La escala #YoTambién Tengo Derechos: Una herramienta para monitorizar la convención sobre los derechos de las personas con discapacidad
Resumen Resulta urgente e ineludible contar con herramientas, con adecuadas evidencias de validez y fiabilidad, que permitan evaluar hasta qué punto las personas con discapacidad intelectual (DI) verdaderamente ejercen sus derechos en todos los ámbitos de su vida. El objetivo de este artículo consiste en proporcionar evidencias acerca de la utilidad y la fiabilidad de la versión preliminar de la escala #YoTambién Tengo Derechos, un instrumento diseñado a partir del Modelo de Calidad de Vida y Apoyos. La escala puede ser autoinformada por personas con DI o heteroinformada por familiares o profesionales. Por un lado, mediante un estudio cualitativo con autogestores con DI se proporcionan evidencias acerca de la necesidad y la utilidad de esta herramienta para conocer y monitorizar el cumplimiento de la Convención. Por otro lado, presentamos datos preliminares de la consistencia interna de los ítems, analizando las respuestas de 1.200 personas con DI, familiares y profesionales. La escala #YoTambién Tengo Derechos permitirá llevar a cabo estudios nacionales sobre el cumplimiento de la Convención sobre los Derechos de las Personas con Discapacidad y, con su adaptación al contexto legal y cultural de otros países, estudios comparativos internacionales.
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BUCHNER, T., SHEVLIN, M., DONOVAN, M. A., GERCKE, M., GOLL, H., SISKA, J., JANYSKOVA, K., SMOGORZEWSKA, J., SZUMSKI, G., VLACHOU, A., DEMO, H., FEYERER, E. and CORBY, D. (2021). Same progress for all? Inclusive education, the United Nations Convention on the Rights of Persons with Disabilities and students with intellectual disability in European countries. Journal of Policy and Practice in Intellectual Disabilities, 18(1), 7-22. https://doi.org/10.1111/jppi.12368
BUESCHI, E., ANTENER, G. and PARPAN-BLASER, A. (2022). Intellectual disability in Switzerland: the UN Convention on the Rights of Persons with Disabilities, as a vehicle for progress. Tizard Learning Disability Review, 27(1), 31-39. https://doi.org/10.1108/TLDR-07-2021-0019
CHALACHANOVÁ, A., LID, I. M. and GJERMESTAD, A. (2021). Citizenship of persons with intellectual disabilities within the frame of inclusive research: a scoping review of studies to inform future research. Alter, 15(2), 139-152. https://doi.org/10.1016/j.alter.2020.09.001
COLVER, A. F., DICKINSON, H. O., PARKINSON, K., ARNAUD, C., BECKUNG, E., FAUCONNIER, J., MARCELLI, M., MCMANUS, V., MICHELSEN, S. I., PARKES, J. and THYEN, U. (2011). Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study. Disability and Rehabilitation, 33(1), 28-35. https://doi.org/10.3109/09638288.2010.485669
CRESWELL, J. (2014). Research design: qualitative, quantitative and mixed methods approaches (4.th Eds). SAGE.
DIDI, A., DOWSE, L. and SMITH, L. (2018). Intellectual disability and complex support needs: human rights perspective for policy and practice. The International Journal of Human Rights, 22(8), 989-1006. https://doi.org/10.1080/13642987.2018.1485653
ESTEBAN, L., NAVAS, P., VERDUGO, M. Á. and ARIAS, V. B. (2021). Community living, intellectual disability and extensive support needs: a rights-based approach to assessment and intervention. International Journal of Environmental Research and Public Health, 18(6), e3175. https://doi.org/10.3390/ijerph18063175
FERNÁNDEZ, M., GÓMEZ, L. E., ARIAS, V. B., AGUAYO, V., AMOR, A. M., ANDELIC, N. and VERDUGO, M. Á. (2019). A new scale for measuring quality of life in acquired brain injury. Quality of life Research, 28(3), 801-814. https://doi.org/10.1007/s11136-018-2047-5
GÓMEZ, L. E., ALCEDO, M. A., ARIAS, B., FONTANIL, Y., ARIAS, V. B., MONSALVE, M. A. and VERDUGO, M. Á. (2016). A new scale for the measurement of quality of life in children with intellectual disability. Research in Developmental Disabilities, 53-54, 399-410. https://doi.org/10.1016/j.ridd.2016.03.005
GÓMEZ, L. E., MONSALVE, A., MORÁN, L., ALCEDO, M. A., LOMBARDI, M. and SCHALOCK, R. L. (2020). Measurable indicators of CRPD for people with intellectual and developmental disabilities within the framework of quality of life. International Journal of Environmental Research and Public Health, 17, Article 5123. https://doi.org/10.3390/ijerph17145123
GÓMEZ, L. E., MORÁN, L., AL-HALABÍ, S., SWERTS, C., VERDUGO, M. Á. and SCHALOCK, R. L. (2022). Quality of life and the International Convention on the Rights of Persons with Disabilities: consensus indicators for assessment. Psicothema, 34(2), 182-191. https://doi.org/10.7334/psicothema2021.574
GÓMEZ, L. E., MORÁN, M. L., NAVAS, P., VERDUGO, M. Á., SCHALOCK, R. L., LOMBARDI, M., VICENTE, E., GUILLÉN, V. M., BALBONI, G., SWERTS, C., AL-HALABÍ, S., ALCEDO, M. A., MONSALVE, A., & RROWN, I. (2023). Using the quality of life framework to operationalize and assess CRPD Articles and Sustainable Development Goals. Journal of Policy and Practice in Intellectual Disabilities. Advance on line publication. https://doi.org/10.1111/jppi.12470
GÓMEZ, L. E., MORÁN, M. L., NAVAS, P., VICENTE, E., GUILLÉN, V. M., MONSALVE, A., ALCEDO, M. A., AL-HALABÍ, S., BALBONI, G., LOMBARDI, M., SWERTS, C., SCHALOCK, R. L. and VERDUGO, M. Á. (in press). Escala #YoTambién Tengo Derechos [#Rights4MeToo Scale]. INICO.
GÓMEZ, L. E. and NAVAS, P. (2022). La Convención sobre Derechos de las Personas con Discapacidad: logros y retos en España. In C. VELOSO, L. MARTINS y M. Á. VERDUGO (Eds.), Direitos humanos, apoios e autonomia: os novos rumos inclusão da pessoa com deficiencia (pp. 23-38). Feapes MG.
GÓMEZ, L. E., SCHALOCK, R. L. and VERDUGO, M. Á. (2021a). A new paradigm in the field of intellectual and developmental disabilities: characteristics and evaluation. Psicothema, 33(1), 28-35. https://doi.org/10.7334/psicothema2020.385
GÓMEZ, L. E., SCHALOCK, R. L. and VERDUGO, M. Á. (2021b). A Quality of Life Supports Model: six research-focused steps to evaluate the model and enhance research practices in the field of IDD. Research in Developmental Disabilities, 119, 104112. https://doi.org/10.1016/j.ridd.2021.104112
GÓMEZ, L. E., VERDUGO, M. Á. and ARIAS, B. (2015). Validity and reliability of the INICO-FEAPS Scale: an assessment of quality of life for people with intellectual and developmental disabilities. Research in Intellectual and Developmental Disabilities, 36, 600-610. https://doi.org/10.1016/j.ridd.2014.10.049
GÓMEZ, L. E., VERDUGO, M. Á., ARIAS, B. and IRURTIA, M. J. (2011). Evaluación de los derechos de las personas con discapacidad intelectual: estudio preliminar [Evaluation of the rights of people with intellectual disabilities: preliminary study]. Behavioral Psychology-Psicología Conductual, 19(1), 207-222.
HOUSEWORTH, J., STANCLIFFE, R. J. and TICHÁ, R. (2019). Examining the National Core Indicators’ Potential to monitor rights of people with intellectual and developmental disabilities according to the CRPD. Journal of Policy and Practice in Intellectual Disabilities, 16(4), 342-351. https://doi.org/10.1111/jppi.12315
KARR, V. L. (2011). A life of quality: informing the UN Convention on the Rights of Persons with Disabilities. Journal of Disability Policy Studies, 22(2), 67-82. https://doi.org/10.1177/1044207310392785
LOMBARDI, M., VANDENBUSSCHE, H., CLAES, C., SCHALOCK, R. L., DE MAEYER, J. and VANDEVELDE, S. (2019). The concept of quality of life as framework for implementing the UNCRPD. Journal of Policy and Practice in Intellectual Disabilities, 16, 180-190. https://doi.org/10.1111/jppi.12279
LUCKASSON, R., SCHALOCK, R. L., TASSÉ, M. J. and SHOGREN, K. A. (2023). The intellectual and developmental disability shared citizenship paradigm: its cross-cultural status, implementation and confirmation. Journal of Intellectual Disabiilty Research, 67(1), 64-76. https://doi.org/10.1111/jir.12992
MCCONKEY, R., SLATER, P., SMITH, A., DUBOIS, L. and SHELLARD, A. (2021). Perceptions of the rights and capabilities of people with intellectual disability in the United States. Journal of Applied Research in Intellectual Disabilities, 34(2), 537-545. https://doi.org/10.1111/jar.12819
MITTLER, P. (2015). The UN Convention on the rights of persons with disabilities: implementing a paradigm shift. Journal of Policy and Practice in Intellectual Disabilities, 12, 79-89. https://doi.org/10.1111/jppi.12118
MORALES, L., MORÁN, L. and GÓMEZ, L. E. (2021). Evaluación de resultados personales relacionados con derechos en jóvenes con discapacidad intelectual y TEA [Assessment of rights-related personal outcomes in young people with intellectual disability and autism spectrum disorder]. Siglo Cero, 52(3), 81-99. https://doi.org/10.14201/scero20215238199
MORÁN, L., GÓMEZ, L. E. and ALCEDO, M. A. (2019). Inclusión social y autodeterminación: los retos en la calidad de vida de los jóvenes con autismo y discapacidad intelectual [Social inclusion and self-determination: the challenges in the quality of life of youth with autism and intellectual disability]. Siglo Cero, 50(3), 29-46. https://doi.org/10.14201/scero20195032946
MORÁN, L., GÓMEZ, L. E., VERDUGO, M. Á. and SCHALOCK, R. L. (2023). The Quality of Life Supports Model as a Vehicle for Implementing Rights. Behavioral Sciences, 13(5), 365. https://doi.org/10.3390/bs13050365
NAVAS, P., GÓMEZ, L. E., VERDUGO, M. Á. and SCHALOCK, R. L. (2012). Derechos de las personas con discapacidad intelectual: implicaciones de la Convención de Naciones Unidas [Rights of people with intellectual disabilities: implications of the United Nations Convention]. Siglo Cero, 43(3), 7-28.
NAVAS, P., VERDUGO, M. Á., MARTÍNEZ, S., SAINZ, F. and AZA, A. (2018). Derechos y calidad de vida en personas con discapacidad intelectual y mayores necesidades de apoyo [Rights and quality of life of individuals with intellectual disability and extensive support needs]. Siglo Cero, 48(4), 7-66. https://doi.org/10.14201/scero2017484766
PÉREZ-CURIEL, P., VICENTE, E., MORÁN, L. and GÓMEZ, L. E. (2023). The right to sexuality, reproductive health and parenthood for people with intellectual disability: a systematic review. International Journal of Environmental Research and Public Health, 20(2), e1587. https://doi.org/10.3390/ijerph20021587
PETRI, G. (2022). Commentary on intellectual disability in Switzerland: The Convention on the Rights of Persons with Disabilities as a vehicle for progress. Tizard Learning Disability Review, 27(1), 40-45. https://doi.org/10.1108/TLDR-11-2021-0036
PETRI, G., BEADLE-BROWN, J. and BRADSHAW, J. (2021). ‘Even a self-advocate needs to buy milk’. Economic barriers to self-advocacy in the autism and intellectual disability movement. Scandinavian Journal of Disability Research, 23(1), 180-191. http://doi.org/10.16993/sjdr.738
SCHALOCK, R. L. y VERDUGO, M. Á. (2002). Handbook on quality of life for human service practitioners. American Association on Mental Retardation.
SIERRA, M. (2022). Derechos de las personas con discapacidad intelectual: una investigación inclusiva desde el marco de actuación del psicólogo general sanitario [Trabajo Fin de Máster, Universidad de Oviedo].
SLATER, P., MCCONKEY, R., SMITH, A., DUBOIS, L. and SHELLARD, A. (2020). Public attitudes to the rights and community inclusion of people with intellectual disabilities: a transnational study. Research in Developmental Disabilities, 105, e103754. https://doi.org/10.1016/j.ridd.2020.103754
STRNADOVÁ, I. and WALMSLEY, J. (2018). Peer-reviewed articles on inclusive research: do co-researchers with intellectual disabilities have a voice? Journal of Applied Research in Intellectual Disabilities, 31(1), 132-141. https://doi.org/10.1111/jar.12378
TICHÁ, R., QIAN, X., STANCLIFFE, R. J., LARSON, S. A. and BONARDI, A. (2018). Alignment between the Convention on the Rights of Persons with Disabilities and the National Core Indicators Adult Consumer Survey. Journal of Policy and Practice in Intellectual Disabilities, 15(3), 247-255. https://doi.org/10.1111/jppi.12260
UNITED NATIONS. (2006). Convention on the Rights of Persons with Disabilities (CRPD). https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
UNITED NATIONS. (2015). Transforming our world: the 2030 Agenda for Sustainable Development. https://www.unfpa.org/sites/default/files/resource-pdf/Resolution_A_RES_70_1_EN.pdf
VERDUGO, M. Á., GÓMEZ, L. E., ARIAS, B., NAVAS, P. and SCHALOCK, R. L. (2014). Measuring quality of life in persons with intellectual and multiple disabilities: validation of the San Martín Scale. Research in Developmental Disabilities, 35(1), 75-86. https://doi.org/10.1016/j.ridd.2013.10.025
VERDUGO, M. Á., NAVAS, P., GÓMEZ, L. E. and SCHALOCK, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56(2), 1036-1045. https://doi.org/10.1111/j.1365-2788.2012.01585.x
VERDUGO, M. Á., SCHALOCK, R. L. and GÓMEZ, L. E. (2021). The Quality of Life Supports Model: twenty-five years of parallel paths have come together. Siglo Cero, 52(3), 9-28. https://doi.org/10.14201/scero2021523928
BUCHNER, T., SHEVLIN, M., DONOVAN, M. A., GERCKE, M., GOLL, H., SISKA, J., JANYSKOVA, K., SMOGORZEWSKA, J., SZUMSKI, G., VLACHOU, A., DEMO, H., FEYERER, E. and CORBY, D. (2021). Same progress for all? Inclusive education, the United Nations Convention on the Rights of Persons with Disabilities and students with intellectual disability in European countries. Journal of Policy and Practice in Intellectual Disabilities, 18(1), 7-22. https://doi.org/10.1111/jppi.12368
BUESCHI, E., ANTENER, G. and PARPAN-BLASER, A. (2022). Intellectual disability in Switzerland: the UN Convention on the Rights of Persons with Disabilities, as a vehicle for progress. Tizard Learning Disability Review, 27(1), 31-39. https://doi.org/10.1108/TLDR-07-2021-0019
CHALACHANOVÁ, A., LID, I. M. and GJERMESTAD, A. (2021). Citizenship of persons with intellectual disabilities within the frame of inclusive research: a scoping review of studies to inform future research. Alter, 15(2), 139-152. https://doi.org/10.1016/j.alter.2020.09.001
COLVER, A. F., DICKINSON, H. O., PARKINSON, K., ARNAUD, C., BECKUNG, E., FAUCONNIER, J., MARCELLI, M., MCMANUS, V., MICHELSEN, S. I., PARKES, J. and THYEN, U. (2011). Access of children with cerebral palsy to the physical, social and attitudinal environment they need: a cross-sectional European study. Disability and Rehabilitation, 33(1), 28-35. https://doi.org/10.3109/09638288.2010.485669
CRESWELL, J. (2014). Research design: qualitative, quantitative and mixed methods approaches (4.th Eds). SAGE.
DIDI, A., DOWSE, L. and SMITH, L. (2018). Intellectual disability and complex support needs: human rights perspective for policy and practice. The International Journal of Human Rights, 22(8), 989-1006. https://doi.org/10.1080/13642987.2018.1485653
ESTEBAN, L., NAVAS, P., VERDUGO, M. Á. and ARIAS, V. B. (2021). Community living, intellectual disability and extensive support needs: a rights-based approach to assessment and intervention. International Journal of Environmental Research and Public Health, 18(6), e3175. https://doi.org/10.3390/ijerph18063175
FERNÁNDEZ, M., GÓMEZ, L. E., ARIAS, V. B., AGUAYO, V., AMOR, A. M., ANDELIC, N. and VERDUGO, M. Á. (2019). A new scale for measuring quality of life in acquired brain injury. Quality of life Research, 28(3), 801-814. https://doi.org/10.1007/s11136-018-2047-5
GÓMEZ, L. E., ALCEDO, M. A., ARIAS, B., FONTANIL, Y., ARIAS, V. B., MONSALVE, M. A. and VERDUGO, M. Á. (2016). A new scale for the measurement of quality of life in children with intellectual disability. Research in Developmental Disabilities, 53-54, 399-410. https://doi.org/10.1016/j.ridd.2016.03.005
GÓMEZ, L. E., MONSALVE, A., MORÁN, L., ALCEDO, M. A., LOMBARDI, M. and SCHALOCK, R. L. (2020). Measurable indicators of CRPD for people with intellectual and developmental disabilities within the framework of quality of life. International Journal of Environmental Research and Public Health, 17, Article 5123. https://doi.org/10.3390/ijerph17145123
GÓMEZ, L. E., MORÁN, L., AL-HALABÍ, S., SWERTS, C., VERDUGO, M. Á. and SCHALOCK, R. L. (2022). Quality of life and the International Convention on the Rights of Persons with Disabilities: consensus indicators for assessment. Psicothema, 34(2), 182-191. https://doi.org/10.7334/psicothema2021.574
GÓMEZ, L. E., MORÁN, M. L., NAVAS, P., VERDUGO, M. Á., SCHALOCK, R. L., LOMBARDI, M., VICENTE, E., GUILLÉN, V. M., BALBONI, G., SWERTS, C., AL-HALABÍ, S., ALCEDO, M. A., MONSALVE, A., & RROWN, I. (2023). Using the quality of life framework to operationalize and assess CRPD Articles and Sustainable Development Goals. Journal of Policy and Practice in Intellectual Disabilities. Advance on line publication. https://doi.org/10.1111/jppi.12470
GÓMEZ, L. E., MORÁN, M. L., NAVAS, P., VICENTE, E., GUILLÉN, V. M., MONSALVE, A., ALCEDO, M. A., AL-HALABÍ, S., BALBONI, G., LOMBARDI, M., SWERTS, C., SCHALOCK, R. L. and VERDUGO, M. Á. (in press). Escala #YoTambién Tengo Derechos [#Rights4MeToo Scale]. INICO.
GÓMEZ, L. E. and NAVAS, P. (2022). La Convención sobre Derechos de las Personas con Discapacidad: logros y retos en España. In C. VELOSO, L. MARTINS y M. Á. VERDUGO (Eds.), Direitos humanos, apoios e autonomia: os novos rumos inclusão da pessoa com deficiencia (pp. 23-38). Feapes MG.
GÓMEZ, L. E., SCHALOCK, R. L. and VERDUGO, M. Á. (2021a). A new paradigm in the field of intellectual and developmental disabilities: characteristics and evaluation. Psicothema, 33(1), 28-35. https://doi.org/10.7334/psicothema2020.385
GÓMEZ, L. E., SCHALOCK, R. L. and VERDUGO, M. Á. (2021b). A Quality of Life Supports Model: six research-focused steps to evaluate the model and enhance research practices in the field of IDD. Research in Developmental Disabilities, 119, 104112. https://doi.org/10.1016/j.ridd.2021.104112
GÓMEZ, L. E., VERDUGO, M. Á. and ARIAS, B. (2015). Validity and reliability of the INICO-FEAPS Scale: an assessment of quality of life for people with intellectual and developmental disabilities. Research in Intellectual and Developmental Disabilities, 36, 600-610. https://doi.org/10.1016/j.ridd.2014.10.049
GÓMEZ, L. E., VERDUGO, M. Á., ARIAS, B. and IRURTIA, M. J. (2011). Evaluación de los derechos de las personas con discapacidad intelectual: estudio preliminar [Evaluation of the rights of people with intellectual disabilities: preliminary study]. Behavioral Psychology-Psicología Conductual, 19(1), 207-222.
HOUSEWORTH, J., STANCLIFFE, R. J. and TICHÁ, R. (2019). Examining the National Core Indicators’ Potential to monitor rights of people with intellectual and developmental disabilities according to the CRPD. Journal of Policy and Practice in Intellectual Disabilities, 16(4), 342-351. https://doi.org/10.1111/jppi.12315
KARR, V. L. (2011). A life of quality: informing the UN Convention on the Rights of Persons with Disabilities. Journal of Disability Policy Studies, 22(2), 67-82. https://doi.org/10.1177/1044207310392785
LOMBARDI, M., VANDENBUSSCHE, H., CLAES, C., SCHALOCK, R. L., DE MAEYER, J. and VANDEVELDE, S. (2019). The concept of quality of life as framework for implementing the UNCRPD. Journal of Policy and Practice in Intellectual Disabilities, 16, 180-190. https://doi.org/10.1111/jppi.12279
LUCKASSON, R., SCHALOCK, R. L., TASSÉ, M. J. and SHOGREN, K. A. (2023). The intellectual and developmental disability shared citizenship paradigm: its cross-cultural status, implementation and confirmation. Journal of Intellectual Disabiilty Research, 67(1), 64-76. https://doi.org/10.1111/jir.12992
MCCONKEY, R., SLATER, P., SMITH, A., DUBOIS, L. and SHELLARD, A. (2021). Perceptions of the rights and capabilities of people with intellectual disability in the United States. Journal of Applied Research in Intellectual Disabilities, 34(2), 537-545. https://doi.org/10.1111/jar.12819
MITTLER, P. (2015). The UN Convention on the rights of persons with disabilities: implementing a paradigm shift. Journal of Policy and Practice in Intellectual Disabilities, 12, 79-89. https://doi.org/10.1111/jppi.12118
MORALES, L., MORÁN, L. and GÓMEZ, L. E. (2021). Evaluación de resultados personales relacionados con derechos en jóvenes con discapacidad intelectual y TEA [Assessment of rights-related personal outcomes in young people with intellectual disability and autism spectrum disorder]. Siglo Cero, 52(3), 81-99. https://doi.org/10.14201/scero20215238199
MORÁN, L., GÓMEZ, L. E. and ALCEDO, M. A. (2019). Inclusión social y autodeterminación: los retos en la calidad de vida de los jóvenes con autismo y discapacidad intelectual [Social inclusion and self-determination: the challenges in the quality of life of youth with autism and intellectual disability]. Siglo Cero, 50(3), 29-46. https://doi.org/10.14201/scero20195032946
MORÁN, L., GÓMEZ, L. E., VERDUGO, M. Á. and SCHALOCK, R. L. (2023). The Quality of Life Supports Model as a Vehicle for Implementing Rights. Behavioral Sciences, 13(5), 365. https://doi.org/10.3390/bs13050365
NAVAS, P., GÓMEZ, L. E., VERDUGO, M. Á. and SCHALOCK, R. L. (2012). Derechos de las personas con discapacidad intelectual: implicaciones de la Convención de Naciones Unidas [Rights of people with intellectual disabilities: implications of the United Nations Convention]. Siglo Cero, 43(3), 7-28.
NAVAS, P., VERDUGO, M. Á., MARTÍNEZ, S., SAINZ, F. and AZA, A. (2018). Derechos y calidad de vida en personas con discapacidad intelectual y mayores necesidades de apoyo [Rights and quality of life of individuals with intellectual disability and extensive support needs]. Siglo Cero, 48(4), 7-66. https://doi.org/10.14201/scero2017484766
PÉREZ-CURIEL, P., VICENTE, E., MORÁN, L. and GÓMEZ, L. E. (2023). The right to sexuality, reproductive health and parenthood for people with intellectual disability: a systematic review. International Journal of Environmental Research and Public Health, 20(2), e1587. https://doi.org/10.3390/ijerph20021587
PETRI, G. (2022). Commentary on intellectual disability in Switzerland: The Convention on the Rights of Persons with Disabilities as a vehicle for progress. Tizard Learning Disability Review, 27(1), 40-45. https://doi.org/10.1108/TLDR-11-2021-0036
PETRI, G., BEADLE-BROWN, J. and BRADSHAW, J. (2021). ‘Even a self-advocate needs to buy milk’. Economic barriers to self-advocacy in the autism and intellectual disability movement. Scandinavian Journal of Disability Research, 23(1), 180-191. http://doi.org/10.16993/sjdr.738
SCHALOCK, R. L. y VERDUGO, M. Á. (2002). Handbook on quality of life for human service practitioners. American Association on Mental Retardation.
SIERRA, M. (2022). Derechos de las personas con discapacidad intelectual: una investigación inclusiva desde el marco de actuación del psicólogo general sanitario [Trabajo Fin de Máster, Universidad de Oviedo].
SLATER, P., MCCONKEY, R., SMITH, A., DUBOIS, L. and SHELLARD, A. (2020). Public attitudes to the rights and community inclusion of people with intellectual disabilities: a transnational study. Research in Developmental Disabilities, 105, e103754. https://doi.org/10.1016/j.ridd.2020.103754
STRNADOVÁ, I. and WALMSLEY, J. (2018). Peer-reviewed articles on inclusive research: do co-researchers with intellectual disabilities have a voice? Journal of Applied Research in Intellectual Disabilities, 31(1), 132-141. https://doi.org/10.1111/jar.12378
TICHÁ, R., QIAN, X., STANCLIFFE, R. J., LARSON, S. A. and BONARDI, A. (2018). Alignment between the Convention on the Rights of Persons with Disabilities and the National Core Indicators Adult Consumer Survey. Journal of Policy and Practice in Intellectual Disabilities, 15(3), 247-255. https://doi.org/10.1111/jppi.12260
UNITED NATIONS. (2006). Convention on the Rights of Persons with Disabilities (CRPD). https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
UNITED NATIONS. (2015). Transforming our world: the 2030 Agenda for Sustainable Development. https://www.unfpa.org/sites/default/files/resource-pdf/Resolution_A_RES_70_1_EN.pdf
VERDUGO, M. Á., GÓMEZ, L. E., ARIAS, B., NAVAS, P. and SCHALOCK, R. L. (2014). Measuring quality of life in persons with intellectual and multiple disabilities: validation of the San Martín Scale. Research in Developmental Disabilities, 35(1), 75-86. https://doi.org/10.1016/j.ridd.2013.10.025
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