Beneficios y limitaciones de la planificación centrada en la persona en el campo de la discapacidad intelectual y del desarrollo: una revisión sistemática según las directrices de PRISMA
Resumen La metodología de Planificación Centrada en la Persona (PCP) cada vez tiene mayor impacto en España. Comenzando desde las distintas legislaciones que regulan la atención a este colectivo en las diferentes autonomías y terminando en los centros que proveen este servicio. No obstante, existe escasa literatura internacional de estudios empíricos a grandes escalas que sitúen este enfoque metodológico en una posición relevante que garantice la eficacia de la PCP. El objetivo principal de este estudio es conocer el estado del uso de la metodología de PCP a través de estudios avalados empíricamente que sostengan tanto beneficios como limitaciones durante los últimos 10 años (2012-2022). Para ello, se ha realizado una revisión sistemática desde las directrices de PRISMA (2020), que incluye un total de 31 artículos. Como conclusión, se han descubierto más beneficios que limitaciones entre las que destacan las ventajas en su uso para las personas con discapacidad intelectual y del desarrollo y las mejoras de aspectos relacionados con la autodeterminación. No obstante, las limitaciones prevalecen por la falta de apoyos y recursos adecuados de las organizaciones para responder a una planificación centrada en la persona y la necesidad de formación de las personas implicadas en la elaboración de la PCP, lo que genera la incógnita de si se están realizando buenas prácticas en el uso de dicha metodología.
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Bigby, C., Douglas, J., Smith, E., Carney, T., Then, S. N. y Wiesel, I. (2022). Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences. Journal of Intellectual and Developmental Disability, 47(2), 165-176. https://doi.org/10.3109/13668250.2021.1954481
Bigby, C., Whiteside, M. y Douglas, J. (2019). Providing support for decision making to adults with intellectual disability: perspectives of family members and workers in disability support services. Journal of Intellectual and Developmental Disability, 44(4), 396-409. https://doi.org/10.3109/13668250.2017.1378873
Boland, G. y Guerin, S. (2021). Connecting locally: the role of adult siblings in supporting the social inclusion in neighbourhoods of adults with intellectual disability. British Journal of Learning Disabilities, 50(3), 327-340. https://doi.org/10.1111/bld.12404
Broady, T. (2014). What is a person-centred approach? Familiarity and understanding of individualised funding amongst carers in New South Wales. Australian Journal of Social Issues, 49(3), 285-307. https://doi.org/10.1002/j.1839-4655.2014.tb00314.x
Chandroo, R., Strnadová, I. y Cumming, T. M. (2020). Is it really student-focused planning? Perspectives of students with autism. Research in Developmental Disabilities, 107, 1-10. https://doi.org/10.1016/j.ridd.2020.103783
Chong, N., Akobirshoev, I., Caldwell, J., Kaye, H. S. y Mitra, M. (2022). The relationship between unmet need for home and community-based services and health and community living outcomes. Disability and Health Journal, 15(2), 101-222. https://doi.org/10.1016/j.dhjo.2021.101222
Collings, S., Dew, A. y Dowse, L. (2018). Unpacking the complexity of planning with persons with cognitive disability and complex support needs. Journal of Applied Research in Intellectual Disabilities, 31(1), 142-151. https://doi.org/10.1111/jar.12381
Corrigan, E. (2014). Person centred planning ‘in action’: exploring the use of person centred planning in supporting young people’s transition and re-integration to mainstream education. British Journal of Special Education, 41(3), 268-288. https://doi.org/10.1111/1467-8578.12069
Croft, B., Petner-Arrey, J. y Hiersteiner, D. (2021). Technical assistance needs for realizing person-centered thinking, planning and practices in United States human service systems. Journal of Integrated Care, 29(3), 262-273. https://doi.org/10.1108/JICA-05-2020-0032
Cuervo, T. R., Iglesias-García, M. T. y Fernández-Fernández, S. (2017). Efectos y beneficios de la planificación centrada en la persona (PCP) en las personas adultas con discapacidad intelectual, en las organizaciones y en la comunidad. Estado de la cuestión. Siglo Cero, 48(2), 25-40. https://doi.org/10.14201/scero20174822540
Dew, A., Collings, S., Dillon Savage, I., Gentle, E. y Dowse, L. (2019). “Living the life I want”: a framework for planning engagement with people with intellectual disability and complex support needs. Journal of Applied Research in Intellectual Disabilities, 32(2), 401-412. https://doi.org/10.1111/jar.12538
Dorado, A., Casas, D. G., Álvarez, J. M. R. y Belinchón, R. S. (2021). Propuesta de apoyo a personas con capacidad modificada desde el trabajo social. El caso de las entidades tutelares. Política y Sociedad, 58(3), 1-13. https://link.gale.com/apps/doc/A689027649/AONE?u=anon~3f1958b0&sid=googleScholar&xid=d8781aab
Ellem, K., Chenoweth, L. y Edwards, R. (2019). Choosing the harder road: naming the challenges for families in person-centred planning. Journal of Intellectual Disabilities, 23(3), 397-412. https://doi.org/10.1177/1744629518784154
Esteban, L., Navas, P., Verdugo, M. Á. y Arias, V. B. (2021). Community living, intellectual disability and extensive support needs: a rights-based approach to assessment and intervention. International Journal of Environmental Research and Public Health, 18(6), 31-75. https://doi.org/10.3390/ijerph18063175
Farmer, K. E. y Stringer, P. (2023). Understanding the views of children with profound and multiple learning difficulties for person-centred planning. British Journal of Learning Disabilities, 1-10. https://doi.org/10.1111/bld.12525
Ferraro, M., Trimarco, B., Morganti, M. C., Marino, G., Pace, P. y Marino, L. (2020). Life-long individual planning in children with developmental disability: the active role of parents in the Italian experience. Annali dell’Istituto Superiore di Sanità, 56(2), 171-179. https://doi.org/10.4415/ann_20_02_07
Fleming, P., McGilloway, S. y Barry, S. (2017). Day service provision for people with intellectual disabilities: a case study mapping 15-year trends in Ireland. Journal of Applied Research in Intellectual Disabilities, 30(2), 383-394. https://doi.org/10.1111/jar.12249
Franz, J., Bitner, G., Petriwskyj, A., Ward, M., Adkins, B. y Rolfe, A. (2015). Ecologies of housing and underlying assumptions of vulnerability. Housing, Care and Support, 18(2), 41-50. https://www.emeraldgrouppublishing.com/licensing/reprints.htm
Gadd, T. (2020). Person-centred respite supports: the perspectives of adults with intellectual disabilities in Ireland. British Journal of Learning Disabilities, 48(4), 281-290. https://doi.org/10.1111/bld.12347
Gosse, L., Griffiths, D., Owen, F. y Feldman, M. (2017). Impact of an individualized planning approach on personal outcomes and supports for persons with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 14(3), 198-204. https://doi.org/10.1111/jppi.12209
Hagner, D., Kurtz, A., May, J. y Cloutier, H. (2014). Person-centered planning for transition-aged youth with autism spectrum disorders. Journal of Rehabilitation, 80(1), 4-10. https://n9.cl/pg3n7
Hassan, N. (2017). ‘Putting music on’: everyday leisure activities, choice-making and person-centred planning in a supported living scheme. British Journal of Learning Disabilities, 45(1), 73-80. https://doi.org/10.1111/bld.12178
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