Seis ideas que están cambiando el campo de las discapacidades intelectuales y del desarrollo en todo el mundo
Resumen El propósito del presente artículo es presentar seis ideas que en estos momentos están teniendo influencia en los legisladores y en los proveedores de servicios y apoyos en el ámbito de las discapacidades intelectuales y del desarrollo (que están íntimamente relacionadas). Estas seis ideas son las siguientes: las personas se ven influidas por varios sistemas, debemos enfocar la discapacidad desde un punto de vista holístico, las políticas sobre discapacidad deben tener un enfoque sistemático, los apoyos deben abarcar los elementos de un sistema de apoyos, la evaluación tiene diversos factores y las organizaciones se deben transformar para poder ser sostenibles.
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Claes, C., Ferket, N., Vandevelde, S., Verlet, D., & De Maeyer, J. (2017). Disability policy evaluation: Combining logic models and systems thinking. Intellectual and Developmental Disabilities, 55, 247-257. https://doi.org/10.1352/1934-9556-55.4.247
Claes, C., van Hove, Vandevelde, S., van Loon, & Schalock, R. L (2012). The influence of support strategies, environmental factors, and client characteristics on quality of life- related outcomes. Research in Developmental Disabilities, 33, 96-103. https://doi.org/10.1016/j.ridd.2011.08.024
Gomez, L.E., & Verdugo, M.A. (2016). Outcomes evaluation. In R. L. Schalock and K.D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of people with intellectual disability (2nd ed.) (pp. 71-80). Washington, DC: American Association on Intellectual and Developmental Disabilities.
Lombardi, M., Chiu, C-Y., Schalock, R. L., & Claes, C. (2017). Aligning UNCRPD article, quality of life domains, and supports: International Delphi Study. Gent, Belgium: University College Gent.
Nicholls, J. (2017). Social return on investment—Development and convergence. Evaluation and Program Planning, 64, 127-135. https://doi.org/10.1016/j.evalprogplan.2016.11.011
Reinders, H. (2008). The transformation of human services. Journal of Intellectual Disability Research, 52, 564-571. https://doi.org/10.1111/j.1365-2788.2008.01079.x
Schalock, R. L. (2017). Introduction to the special issue on disability policy in a time of change. Intellectual and Developmental Disabilities, 55, 215-222. https://doi.org/10.1352/1934-9556-55.4.215
Schalock, R. L., & Keith, K.D. (2016). Setting the cross-cultural agenda of quality of life to enhance the lives of people with intellectual disability. In R. L. Schalock and K.D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of people with intellectual disability (2nd ed.) (pp. 71-80). Washington, DC: American Association on Intellectual and Developmental Disabilities.
Schalock, R. L., Gomez, L.E., Verdugo, M.A., & Clases, C. (2017). Evidence and evidence- based practices: Are we there yet? Intellectual and Developmental Disabilities, 55, 112- 119. https://doi.org/10.1352/1934-9556-55.2.112
Schalock, R. L., Luckasson, R., Tasse, M. J., & Verdugo, M.A. (in press). A holistic theoretical approach to intellectual disability: Going beyond the four current perspectives. Intellectual and Developmental Disabilities.
Schalock, R. L., & Verdugo, M. A. (2012). A leadership guide for today's disabilities organizations: Overcoming challenges and making change happen. Baltimore: Brookes.
Schalock, R. L., & Verdugo, M.A. (2013). The transformation of disabilities organizations. Intellectual and Developmental Disabilities, 51, 273-286. https://doi.org/10.1352/1934-9556-51.4.273
Schalock, R. L., Verdugo, M.A., & Lee, T. (2016). A systematic approach to an organization's sustainability. Evaluation and Program Planning, 56, 56-63. https://doi.org/10.1016/j.evalprogplan.2016.03.005
Schalock, R. L., Verdugo, M.A., & Gomez, L.E. (2011). Evidence-based practices in the field of intellectual and developmental disabilities. Evaluation and Program Planning, 34, 273- 282. https://doi.org/10.1016/j.evalprogplan.2010.10.004
Schalock, R. L., Verdugo, M.A., & van Loon, J. (submitted for publication). Understanding organization transformation in evaluation and program planning.
Shogren, K.A., Luckasson, R., & Schalock, R. L. (2015). Using context as an integrative framework to align policy goals, supports, and outcomes in intellectual disability. Intellectual and Developmental Disabilities, 53, 367-376. https://doi.org/10.1352/1934-9556-53.5.367
Turnbull, R., & Stowe, M. (2017). A model for analyzing disability policy. Intellectual and Developmental Disabilities, 55, 223-233. https://doi.org/10.1352/1934-9556-55.4.223
Verdugo, M.A., Jenaro, C., Calvo, I., & Navas, P. (2017). Disability policy implementation from a cross-cultural perspective. Intellectual and Developmental Disabilities, 55, 234-246. https://doi.org/10.1352/1934-9556-55.4.234
Verdugo, M.A., Navas, P., Gomez, L.E., & Schalock, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56, 1036-1045. https://doi.org/10.1111/j.1365-2788.2012.01585.x
Yates, B. T., & Marra, M. (2017). Introduction: Social return on investment (SROI). Evaluation and Program Planning, 64, 95-97. https://doi.org/10.1016/j.evalprogplan.2016.10.013
Claes, C., van Hove, Vandevelde, S., van Loon, & Schalock, R. L (2012). The influence of support strategies, environmental factors, and client characteristics on quality of life- related outcomes. Research in Developmental Disabilities, 33, 96-103. https://doi.org/10.1016/j.ridd.2011.08.024
Gomez, L.E., & Verdugo, M.A. (2016). Outcomes evaluation. In R. L. Schalock and K.D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of people with intellectual disability (2nd ed.) (pp. 71-80). Washington, DC: American Association on Intellectual and Developmental Disabilities.
Lombardi, M., Chiu, C-Y., Schalock, R. L., & Claes, C. (2017). Aligning UNCRPD article, quality of life domains, and supports: International Delphi Study. Gent, Belgium: University College Gent.
Nicholls, J. (2017). Social return on investment—Development and convergence. Evaluation and Program Planning, 64, 127-135. https://doi.org/10.1016/j.evalprogplan.2016.11.011
Reinders, H. (2008). The transformation of human services. Journal of Intellectual Disability Research, 52, 564-571. https://doi.org/10.1111/j.1365-2788.2008.01079.x
Schalock, R. L. (2017). Introduction to the special issue on disability policy in a time of change. Intellectual and Developmental Disabilities, 55, 215-222. https://doi.org/10.1352/1934-9556-55.4.215
Schalock, R. L., & Keith, K.D. (2016). Setting the cross-cultural agenda of quality of life to enhance the lives of people with intellectual disability. In R. L. Schalock and K.D. Keith (Eds.), Cross-cultural quality of life: Enhancing the lives of people with intellectual disability (2nd ed.) (pp. 71-80). Washington, DC: American Association on Intellectual and Developmental Disabilities.
Schalock, R. L., Gomez, L.E., Verdugo, M.A., & Clases, C. (2017). Evidence and evidence- based practices: Are we there yet? Intellectual and Developmental Disabilities, 55, 112- 119. https://doi.org/10.1352/1934-9556-55.2.112
Schalock, R. L., Luckasson, R., Tasse, M. J., & Verdugo, M.A. (in press). A holistic theoretical approach to intellectual disability: Going beyond the four current perspectives. Intellectual and Developmental Disabilities.
Schalock, R. L., & Verdugo, M. A. (2012). A leadership guide for today's disabilities organizations: Overcoming challenges and making change happen. Baltimore: Brookes.
Schalock, R. L., & Verdugo, M.A. (2013). The transformation of disabilities organizations. Intellectual and Developmental Disabilities, 51, 273-286. https://doi.org/10.1352/1934-9556-51.4.273
Schalock, R. L., Verdugo, M.A., & Lee, T. (2016). A systematic approach to an organization's sustainability. Evaluation and Program Planning, 56, 56-63. https://doi.org/10.1016/j.evalprogplan.2016.03.005
Schalock, R. L., Verdugo, M.A., & Gomez, L.E. (2011). Evidence-based practices in the field of intellectual and developmental disabilities. Evaluation and Program Planning, 34, 273- 282. https://doi.org/10.1016/j.evalprogplan.2010.10.004
Schalock, R. L., Verdugo, M.A., & van Loon, J. (submitted for publication). Understanding organization transformation in evaluation and program planning.
Shogren, K.A., Luckasson, R., & Schalock, R. L. (2015). Using context as an integrative framework to align policy goals, supports, and outcomes in intellectual disability. Intellectual and Developmental Disabilities, 53, 367-376. https://doi.org/10.1352/1934-9556-53.5.367
Turnbull, R., & Stowe, M. (2017). A model for analyzing disability policy. Intellectual and Developmental Disabilities, 55, 223-233. https://doi.org/10.1352/1934-9556-55.4.223
Verdugo, M.A., Jenaro, C., Calvo, I., & Navas, P. (2017). Disability policy implementation from a cross-cultural perspective. Intellectual and Developmental Disabilities, 55, 234-246. https://doi.org/10.1352/1934-9556-55.4.234
Verdugo, M.A., Navas, P., Gomez, L.E., & Schalock, R. L. (2012). The concept of quality of life and its role in enhancing human rights in the field of intellectual disability. Journal of Intellectual Disability Research, 56, 1036-1045. https://doi.org/10.1111/j.1365-2788.2012.01585.x
Yates, B. T., & Marra, M. (2017). Introduction: Social return on investment (SROI). Evaluation and Program Planning, 64, 95-97. https://doi.org/10.1016/j.evalprogplan.2016.10.013
Schalock, R. (2018). Seis ideas que están cambiando el campo de las discapacidades intelectuales y del desarrollo en todo el mundo. Siglo Cero, 49(1), 21–23. https://doi.org/10.14201/scero20184912133
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