The “Down Syndrome Advantage” in the Young People with Intellectual Disabilities Quality of Life

Abstract

The aim of the study was to examine the “Down syndrome advantage” phenomenon in the family and individual quality of life of young people with intellectual disabilities (ID). The sample consisted of 84 young people with ID (mean age 21,41 years; SD = 2,87), 20 of them with Down syndrome (DS) (23,81 %). The instruments were the Family Quality of Life Scale (FQoL) and the INICO-FEAPS Scale, in its reported by others version (QoL-H) and self-reported version (QoL-A). The results reflect greater satisfaction with FQoL and better QoL-H scores in the young people with DS’ families, while QoL-A is higher among young people without DS. Neither the age of the parents nor the level of income was related to these variables. The fact that the differences found in family and individual QoL are favorable for young people with DS when their relatives are the informants, but unfavorable in the self-reported version, suggests an not causal explanation of the phenomenon, but related to family expectations and their access to resources and supports. This encourages us to highlight the importance of people’s self-perception and report in the evaluation of the QoL of young people with ID.
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