Quality of Life: Perception by Adults with Developmental Disabilities versus Professionals’ Reports
Abstract Currently, the intervention models for individuals with Developmental Disabilities (DD) focus on Quality of Life outcomes (QOL). The goal of this study was to analyze the QOL of adults and to determine the influence of personal and dis-ability factors in QOL. A sample of 119 adults with DD (91 male and 28 female; age: M = 45.68; SD = 12.57) participated in the study. The QOL was assessed by the Escala INICO-FEAPS. T contrast were conducted to compare outcomes in adults with DD with the norm, and ANOVAs to examine the differences between the dimensions of QOL and the incidence of the studied factors. Outcomes show that adult people with DD informed low levels of QOL, specifically in Interpersonal Relationship, Social In-clusion, and Self-determination. The most factor that influence on QOL perception was the level of dependence. In conclusion, the results show that professionals assess better the QOL than the own individuals with DD.
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Aja Ramos, R. E., Gerolin, M., Canto Combarro, A. y Vidorreta Gutiérrez, I. (2014). Análisis de la incidencia de factores personales y ambientales en la calidad de vida de 224 personas con discapacidad intelectual en Bizkaia. Siglo Cero, 45 (251), 47-61.
Badía Corbella, M., Rodríguez Pedraza, P., Orgaz Baz, M. B. y Blanco Pedraz, J. M. (2013). Calidad de vida en los pacientes con parálisis cerebral en proceso de envejecimiento. Rehabilitación, 47, 194-199. https:/doi.org/10.1016/j.rh.2013.02.002
Balboni, G., Coscarelli, A., Giunti, G. y Schalock, R. L. (2013). The assessment of the quality of life of adults with intellectual disability: the use of self-report and report of others assessment strategies. Research in Developmental Disabilities, 34 (11), 4248-4254. https:/doi.org/10.1016/j.ridd.2013.09.009
Claes, C., Vandevelde, S., Van Hove, G., Van Loon, J., Verschelden, G. y Schalock , R. (2012). Relationship between self-report and proxy ratings on assessed personal quality of life-related outcomes. Journal of Policy and Practice in Intellectual Disabilities, 9 (3), 159-165. https:/doi.org/10.1111/j.1741-1130.2012.00353.x
Gómez, L. E., Verdugo, M. Á. y Arias, B. (2014). Evaluación de la calidad de vida de personas con discapacidad intelectual: conclusiones e implicaciones para las prácticas profesionales. En V Premio de Investigación e Innovación sobre personas con discapacidad intelectual. Manresa. España: AMPANS.
Gómez, L. E., Verdugo, M. Á. y Arias, B. (2015). Validity and reliability of the INICOFEAPS scale: An assessment of quality of life for people with intellectual and developmental disabilities. Research in Developmental Disabilities, 36, 600-610. https:/doi.org/10.1016/j.ridd.2014.10.049
Gómez-Vela, M., Verdugo, M. Á. y Canal, R. (2002). Evaluación de la calidad de vida de adultos con discapacidad intelectual en servicios residenciales comunitarios. Revista de Psicología General y Aplicada, 55, 591-602.
McVilly, K. R., Burton-Smith, R. M. y Davidson, J. A. (2000). Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities. Journal of Intellectual & Developmental Disability, 25 (1), 19-39. https:/doi.org/10.1080/132697800112767
Mirón Canelo, J. A., Alonso Sardón, M., Serrano López de las Hazas, A. y Sáenz González, M. D. C. (2008). [Health-related quality of life among people with intellectual disabilities in Spain]. Revista Panamericana de Salud Pública [Pan American Journal of Public Health], 24 (5), 336-344. https:/doi.org/10.1590/S1020-49892008001100006
Schmidt, S., Power, M., Green, A., Lucas-Carrasco, R., Eser, E., Dragomirecka, E. y Fleck, M. (2010). Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study. Research in Developmental Disabilities, 31 (5), 1015-1026. https:/doi.org/10.1016/j.ridd.2010.04.013
Schwartz, C. y Rabinovitz, S. (2003). Life satisfaction of people with intellectual disability living in community residences: Perceptions of the residents, their parents and staff members. Journal of Intellectual Disability Research, 47 (2), 75-84. https:/doi.org/10.1046/j.1365-2788.2003.00436.x
Van Loon, J. H. M., Bonham, G. S., Peterson, D. D., Schalock, R. L., Claes, C. y Decramer, A. E. M. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 36 (1), 80-87. https:/doi.org/10.1016/j.evalprogplan.2012.08.002
Vega, V., Jenaro, C., Cruz, M. C. y Flores, N. (2011). Calidad de vida de adultos con discapacidad intelectual en centros residenciales permanentes chilenos. Siglo Cero, 42 (238), 26-38.
Verdugo, M. Á., Gómez Sánchez, L. E., Arias, B., Santamaría, M., Clavero, D. y Tamarit, J. (2013). Escala INICO-FEAPS. Evaluación Integral de Calidad de Vida de personas con Discapacidad Intelectual o del Desarrollo. Salamanca: INICO.
Verdugo, M. Á., Schalock, R. L., Arias, B., Gómez, L. E. y Jordán de Urríes, B. (2013). Calidad de vida. En M. Á. Verdugo y R. L. Schalock (Eds.), Discapacidad e inclusión: Manual para la docencia (pp. 440-461). Salamanca: Amarú.
White-Koning, M., Arnaud, C., Dickinson, H. O., Thyen, U., Beckung, E., Fauconnier…, J. y Colver, A. (2007). Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics, 120 (4), 804-814. https:/doi.org/10.1542/peds.2006-3272
White-Koning, M., Grandjean, H., Colver, A. y Arnaud, C. (2008). Parent and professional reports of the quality of life of children with cerebral palsy and associated intellectual impairment. Developmental Medicine and Child Neurology, 50 (8), 618-624. https:/doi.org/10.1111/j.1469-8749.2008.03026.x
Badía Corbella, M., Rodríguez Pedraza, P., Orgaz Baz, M. B. y Blanco Pedraz, J. M. (2013). Calidad de vida en los pacientes con parálisis cerebral en proceso de envejecimiento. Rehabilitación, 47, 194-199. https:/doi.org/10.1016/j.rh.2013.02.002
Balboni, G., Coscarelli, A., Giunti, G. y Schalock, R. L. (2013). The assessment of the quality of life of adults with intellectual disability: the use of self-report and report of others assessment strategies. Research in Developmental Disabilities, 34 (11), 4248-4254. https:/doi.org/10.1016/j.ridd.2013.09.009
Claes, C., Vandevelde, S., Van Hove, G., Van Loon, J., Verschelden, G. y Schalock , R. (2012). Relationship between self-report and proxy ratings on assessed personal quality of life-related outcomes. Journal of Policy and Practice in Intellectual Disabilities, 9 (3), 159-165. https:/doi.org/10.1111/j.1741-1130.2012.00353.x
Gómez, L. E., Verdugo, M. Á. y Arias, B. (2014). Evaluación de la calidad de vida de personas con discapacidad intelectual: conclusiones e implicaciones para las prácticas profesionales. En V Premio de Investigación e Innovación sobre personas con discapacidad intelectual. Manresa. España: AMPANS.
Gómez, L. E., Verdugo, M. Á. y Arias, B. (2015). Validity and reliability of the INICOFEAPS scale: An assessment of quality of life for people with intellectual and developmental disabilities. Research in Developmental Disabilities, 36, 600-610. https:/doi.org/10.1016/j.ridd.2014.10.049
Gómez-Vela, M., Verdugo, M. Á. y Canal, R. (2002). Evaluación de la calidad de vida de adultos con discapacidad intelectual en servicios residenciales comunitarios. Revista de Psicología General y Aplicada, 55, 591-602.
McVilly, K. R., Burton-Smith, R. M. y Davidson, J. A. (2000). Concurrence between subject and proxy ratings of quality of life for people with and without intellectual disabilities. Journal of Intellectual & Developmental Disability, 25 (1), 19-39. https:/doi.org/10.1080/132697800112767
Mirón Canelo, J. A., Alonso Sardón, M., Serrano López de las Hazas, A. y Sáenz González, M. D. C. (2008). [Health-related quality of life among people with intellectual disabilities in Spain]. Revista Panamericana de Salud Pública [Pan American Journal of Public Health], 24 (5), 336-344. https:/doi.org/10.1590/S1020-49892008001100006
Schmidt, S., Power, M., Green, A., Lucas-Carrasco, R., Eser, E., Dragomirecka, E. y Fleck, M. (2010). Self and proxy rating of quality of life in adults with intellectual disabilities: results from the DISQOL study. Research in Developmental Disabilities, 31 (5), 1015-1026. https:/doi.org/10.1016/j.ridd.2010.04.013
Schwartz, C. y Rabinovitz, S. (2003). Life satisfaction of people with intellectual disability living in community residences: Perceptions of the residents, their parents and staff members. Journal of Intellectual Disability Research, 47 (2), 75-84. https:/doi.org/10.1046/j.1365-2788.2003.00436.x
Van Loon, J. H. M., Bonham, G. S., Peterson, D. D., Schalock, R. L., Claes, C. y Decramer, A. E. M. (2013). The use of evidence-based outcomes in systems and organizations providing services and supports to persons with intellectual disability. Evaluation and Program Planning, 36 (1), 80-87. https:/doi.org/10.1016/j.evalprogplan.2012.08.002
Vega, V., Jenaro, C., Cruz, M. C. y Flores, N. (2011). Calidad de vida de adultos con discapacidad intelectual en centros residenciales permanentes chilenos. Siglo Cero, 42 (238), 26-38.
Verdugo, M. Á., Gómez Sánchez, L. E., Arias, B., Santamaría, M., Clavero, D. y Tamarit, J. (2013). Escala INICO-FEAPS. Evaluación Integral de Calidad de Vida de personas con Discapacidad Intelectual o del Desarrollo. Salamanca: INICO.
Verdugo, M. Á., Schalock, R. L., Arias, B., Gómez, L. E. y Jordán de Urríes, B. (2013). Calidad de vida. En M. Á. Verdugo y R. L. Schalock (Eds.), Discapacidad e inclusión: Manual para la docencia (pp. 440-461). Salamanca: Amarú.
White-Koning, M., Arnaud, C., Dickinson, H. O., Thyen, U., Beckung, E., Fauconnier…, J. y Colver, A. (2007). Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics, 120 (4), 804-814. https:/doi.org/10.1542/peds.2006-3272
White-Koning, M., Grandjean, H., Colver, A. y Arnaud, C. (2008). Parent and professional reports of the quality of life of children with cerebral palsy and associated intellectual impairment. Developmental Medicine and Child Neurology, 50 (8), 618-624. https:/doi.org/10.1111/j.1469-8749.2008.03026.x
Badía Corbella, M., Carrasco Trenado, J., Orgaz Baz, M. B., & Escalonilla García, J. M. (2016). Quality of Life: Perception by Adults with Developmental Disabilities versus Professionals’ Reports. Siglo Cero, 47(1), 7–21. https://doi.org/10.14201/scero20161721
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