Factores determinantes del duelo en personas con discapacidad intelectual y Tea: revisión sistemática
Resumen Antecedentes: Históricamente las personas con discapacidad han sido apartadas de los temas relacionados con la muerte y el duelo. Sin embargo, existen factores que afectan e influyen en el afrontamiento que realizan ante una pérdida. Se precisa conocer cómo experimentan el duelo las personas con discapacidad intelectual y discapacidades del desarrollo con objeto de mejorar la atención ofrecida al colectivo. Método: Se ha llevado a cabo una revisión sistemática de los artículos científicos publicados durante los años 2013 a 2020 en las principales bases de datos. De 585 artículos identificados se seleccionaron 14 que cumplieron los criterios de inclusión. Resultados: La inclusión de las personas con discapacidad en los rituales funerarios, mejorar la comunicación y facilitar la expresión emocional se consideran aspectos esenciales para un adecuado afrontamiento del duelo. Conclusiones: Es necesario ofrecer apoyos adaptados al tipo de discapacidad, incrementar la participación y enseñar estrategias de afrontamiento adaptativas en los temas relativos a la muerte y el duelo. Para ello se precisa incrementar la investigación aplicada en aras de diseñar y poner en marcha programas de educación para la muerte y de intervención psicológica ajustados a las necesidades que presenta este colectivo.
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ALCEDO, M. Á., CRISTÓBAL, L., GÓMEZ, L. E. y ARIAS, V. B. (2018). Evaluating the characteristics of the grieving process in people with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 31(6), 999-1007. https://doi.org/10.1111/jar.12454
BARRETO, P., De la TORRE, O. y PÉREZ, M. (2012). Detección del duelo complicado. Psicooncología, 9(2-3), 355-368. https://doi.org/10.5209/rev_PSIC.2013.v9.n2-3.40902
BERGMAN, E. J., HALEY, W. E. y SMALL, B. J. (2011). Who uses bereavement services? An examination of service use by bereaved dementia caregivers. Aging and Mental Health, 15, 531-540. https://doi.org/10.1080/13607863.2010.543661
BLACKMAN, N. (2008). The development of an assessment tool for the bereavement needs of people with learning disabilities. British Journal of Learning Disabilities, 36(3), 165-170. https://doi.org/10.1111/j.1468-3156.2008.00514.x
*BORSAY, C., HALSEY, M. y CRITOPH, A. (2013). Planning, facilitating and evaluating a bereavement group for adults with learning disabilities living in the community. British Journal of Learning Disabilities, 41(4), 266-272. https://doi.org/10.1111/j.1468-3156.2012.00751.x
BRESTAFF, K. (1984). Reactions to death: can the mentally handicapped grieve? Some experience of those who did. Teaching and Training, 22(1), 10-16.
BRICKELL, C. y MUNIR, K. (2008). El duelo y sus complicaciones en las personas con discapacidad intelectual. Revista Síndrome de Down, 25(2), 68-76.
CARROLL, D. W. (2013). Families of children with developmental disablities: understanding stress and opportunities for growth. American Psychological Association. https://doi.org/10.1037/14192-000
CATHCART, F. (1995). Death and people with learning disabilities: interventions to support clients and carers. British Journal of Clinical Psychology, 34(2), 165-175. https://doi.org/10.1111/j.2044-8260.1995.tb01452.x
*CHOW, A. Y. M., McEVOY, J., CHAN, I. K. N., BORSCHEL, M., YUEN, J. H. L. y LO, J. Y. M. (2017). Do men and women with intellectual disabilities understand death? Journal of Intellectual Disability Research, 61(12), 1130-1139. https://doi.org/10.1111/jir.12431
CRISTÓBAL, L., ALCEDO, M. A. y GÓMEZ, L. E. (2017). Duelo en discapacidad intelectual: los avances de una década. Revista Española de Discapacidad, 5(2), 53-72. https://doi.org/10.5569/2340-5104.05.02.03
DELORME, M. (1999). Ageing and people with developmental disabilities. En I. BROWN y M. PERCY (Eds.), Developmental disabilities in Ontario (pp. 189-195). Front Porch Publishing.
DODD, P., DOWLING, S. y HOLLINS, S. (2005). A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. Journal of Intellectual Disability Research, 49(7), 537-543. https://doi.org/10.1111/j.1365-2788.2005.00702.x
DODD, P., GUERIN, S., McEVOY, J., BUCKLEY, S., TYRRELL, J. y HILLERY, J. (2008). A study of complicated grief symptoms in people with intellectual disabilities. Journal of Intellectual Disability Research, 52(5), 415-425. https://doi.org/ 10.1111/j.1365-2788.200801043.x
*DOMINGO, E., CUESTA, J. L. y SÁNCHEZ, S. (2018). Cómo afrontar el duelo en las personas con discapacidad. Una aproximación al problema. Siglo Cero, 49(4), 51-68. https://doi.org/10.14201/scero20184945168
DOWLING, S., HUBERT, J., WHITE, S. y HOLLINS, S. (2006). Bereaved adults with intellectual disabilities: a combined randomized controlled trial and qualitative study of two community-based interventions. Journal of Intellectual Disability Research, 50(4), 277-287. https://doi.org/10.1111/j.1365-2788.2005.00759.x
FERNÁNDEZ-ÁVALOS, M., FERNÁNDEZ-ALCÁNTARA, M., CRUZ-QUINTANA, F. y PÉREZ-MARFIL, M. N. (2017). Assessment of the grieving processes in people with intellectual disabilities: a systematic review. Estudios de Psicología, 1-9. https://doi.org/10.1080/02109395.2017.1328846
*FORRESTER-JONES, R. (2013). The road barely taken: funerals, and people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26(3), 243-256. https://doi.org/10.1111/jar.12022
GILRANE-McGARRY, U. y TAGGART, L. (2012). An exploration of the support received by people with intellectual disabilities who have been bereaved. Journal of Research in Nursing, 12, 129-144. https://doi.org/10.1177/1744987106075611
HOLLINS, S. y ESTERHUYZEN, A. (1997). Bereavement and grief in adults with intellectual disabilities. British Journal of Psychiatry, 170, 497-501. https://doi.org/10.1192/bjp.170.6.497
HUME, K., REGAN, T., MEGRONIGLE, L. y RHINEHALT, C. (2016). Supporting students with autism spectrum disorder through grief and loss. Teaching Exceptional Children, 48(3), 128-136. https://doi.org/10.1177/0040059915618196
*IRWIN, L., O’MALLEY, G., NEELOFUR, S. y GUERIN, S. (2017). An exploration of clinical psychology’s response to parental bereavement in adults with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 30(6), 1065-1075. https://doi.org/10.1111/jar.12380
JAMES, I. A. (1995). Helping people with learning disability to cope with bereavement. British Journal of Learning Disabilities, 23, 74-78. https://doi.org/10.1111/j.1468-3156.1995.tb00168.x
KITCHING, N. (1987). Helping people with mental handicaps cope with bereavement: a case study with discussion. British Journal of Learning Disabilities, 15(2), 48-86. https://doi.org/10.1111/j.1468-3156.1987.tb00395.x
KOEHLER, K. (2016). Supporting children and young people with Autism Spectrum Disorder through bereavement. Bereavement Care, 35(3), 94-101. https://doi.org/10.1080/02682621.2016.1254437
LAWHON, T. (2004). Teachers and schools can aid grieving students. Education, 124(3), 559-566.
LORD, A. J., FIELD, S. y SMITH, I. C. (2017). The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: a metasynthesis. Journal of Applied Research in Intellectual Disabilities, 30(6), 1007-1021. https://doi.org/10.1111/jar.12376
MACHALE, R. y CAREY, S. (2002). An investigation of the effects of bereavement on mental health and challenging behaviour in adults with learning disability. British Journal of Learning Disabilities, 30(3), 113-117. https://doi.org/10.1046/j.1468-3156.2002.00166.x
MACHALE, R., McEVOY, J. y TIERNEY, E. (2009). Caregiver perceptions of the understanding of death and need for bereavement support in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 22(6), 574-581. https://doi.org/ 10.1111/j.1468-3148.2009.00513.x
MAPPIN, R. y HANLON, D. (2005). Description and evaluation of a bereavement group for people with learning disabilities. British Journal of Learning Disabilities, 33(3), 106-112. https://doi.org/10.1111/j.1468-3156.2005.00339.x
McADAMS, E. y STOUGH, L. (2018). Teacher perspectives on grief among children with intellectual disabilities. Journal of Loss and Trauma, 23(2), 159-175. https://doi.org/10.1080/15325024.2018.1434859
McBRIDE, J. y SIMMS, S. (2001). Death in the family: adapting a family systems framework to the grief process. American Journal of Family Therapy, 29(1), 59-73. https://doi.org/ 10.1080/019261801750182414
McCLEAN, K. y GUERIN, S. (2019). A qualitative analysis of psychologists’ views of bereavement among children with intellectual disability in Ireland. British Journal of Learning Disabilities, 47(4), 247-254. https://doi.org/ 10.1111/bld.12284
McEVOY, J., MACHALE, R. y TIERNEY, E. (2012). Concept of death and perceptions of bereavement in adults with intellectual disabilities. Journal of Intellectual Disability Research, 56(2), 191-203. https://doi.org/10.1111/j.1365-2788.2011.01456.x
*McEVOY, J., TREACY, B. y QUIGLEY, J. (2017). A matter of life and death: knowledge about the body and concept of death in adults with intellectual disabilities. Journal of Intellectual Disability Research, 61(1), 89-98. https://doi.org/10.1111/jir.12347
*McRITCHIE, R., McKENZIE, K., QUAYLE, E., HARLIN, M. y NEUMANN, K. (2014). How adults with an intellectual disability experience bereavement and grief: a qualitative exploration. Death Studies, 38(3), 179-185. https://doi.org/10.1080/07481187.2012.738772
MELHEM, N. M., MORITZ, G., WALKER, M., SHEAR, M. K. y BRENT, D. (2007). Phenomenology and correlates of complicated grief in children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 46, 493-499. https://doi.org/10.1097/chi.0b013e31803062a9
MESIBOV, G. B., SHEA, V. y SCHOPLER, E. (2005). The TEACCH approach to autism spectrum disorders. Springer Science & Business Media.
MUÑIZ, V., ALCEDO, M. A. y GÓMEZ, L. E. (2017). El proceso de duelo de personas con discapacidad intelectual. Siglo Cero, 48(3), 7-25. https://doi.org/14201/scero2017483725
*O’KEEFFE, L., GUERIN, S., McEVOY, J., LOCKHART, K. y DODD, P. (2019). The process of developing self-report measures in intellectual disability: a case study of a complicated grief scale. British Journal of Learning Disabilities, 47(2), 134-144. https://doi.org/10.1111/bld.12261
OSWIN, M. (1992). Don’t ask us to dance: some aspects of bereavement for people who have learning difficulties. Clinical Psycholy Forum, 44, 16-21.
RODRÍGUEZ-HERRERO, P., DE LA HERRÁN, A. e IZUZQUIZA, D. (2013). “Y si me muero… ¿Dónde está mi futuro?” Hacia una educación para la muerte en personas con discapacidad intelectual. Educación XXI, 16(1), 329-350. https://doi.org/10.5944/educxx1.16.1.729
*RODRÍGUEZ-HERRERO, P., IZUZQUIZA, D. y De la HERRÁN, A. (2013). Diseño, aplicación y evaluación de un programa de educación para la muerte dirigido a personas adultas con discapacidad intelectual. Revista Iberoamericana de Educación, 63(1), 199-219.
*RODRÍGUEZ-HERRERO, P., IZUZQUIZA, D. y De la HERRÁN, A. (2015). Concept of death in young people with intellectual disability: a contribution to the pedagogy on death. Siglo Cero, 46(1), 67-80. https://doi.org/10.14201/scero20154616780
*STANCLIFFE, R. J., WIESE, M. Y., READ, S., JELTES, G. y CLAYTON, J. M. (2016). Knowing, planning for and fearing death: do adults with intellectual disability and disability staff differ? Research in Developmental Disabilities, 49, 47-59. https://doi.org/10.1016/j.ridd.2015.11.016
STODDART, K. P., BURKE, L. y TEMPLE, V. (2002). Outcome evaluation of bereavement groups for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(1), 28-35. https://doi.org/ 10.1046/j.1468-3148.2002.00084.x
*THORP, N., STEDMON, J. y LLOYD, H. (2018). “I carry her in my heart”: an exploration of the experience of bereavement for people with learning disability. British Journal of Learning Disabilities, 46(1), 45-53. https://doi.org/10.1111/bld.12212
TUFFREY-WIJNE, I. y ROSE, T. (2017). Investigating the factors that affect the communication of death-related bad news to people with intellectual disabilities by staff in residential and supported living services: an interview study. Journal of Intellectual Disability Research, 61(8), 727-736. https://doi.org/10.1111/jir.12375
WASS, H. y CORR, C. A. (1982). Helping children cope with death: guidelines and resources. Hemisphere Publishing Corporation.
WORDEN, J. W. (2013). El tratamiento del duelo. Asesoramiento psicológico y terapia. Paidós.
*YOUNG, H. y GARRARD, B. (2016). Bereavement and loss: developing a memory box to support a young woman with profound learning disabilities. British Journal of Learning Disabilities, 44(1), 78-84. https://doi.org/10.1111/jir.1237510.1111/bld.12129
*ZAKRESKI, M. J. (2017). Treating complicated grief in a teenager with autism: when the client’s limitations prevent engagement in therapy. Clinical Practice in Pediatric Psychology, 5(3), 273. https://doi.org/10.1111/jir.1237510.1037/cpp0000191
BARRETO, P., De la TORRE, O. y PÉREZ, M. (2012). Detección del duelo complicado. Psicooncología, 9(2-3), 355-368. https://doi.org/10.5209/rev_PSIC.2013.v9.n2-3.40902
BERGMAN, E. J., HALEY, W. E. y SMALL, B. J. (2011). Who uses bereavement services? An examination of service use by bereaved dementia caregivers. Aging and Mental Health, 15, 531-540. https://doi.org/10.1080/13607863.2010.543661
BLACKMAN, N. (2008). The development of an assessment tool for the bereavement needs of people with learning disabilities. British Journal of Learning Disabilities, 36(3), 165-170. https://doi.org/10.1111/j.1468-3156.2008.00514.x
*BORSAY, C., HALSEY, M. y CRITOPH, A. (2013). Planning, facilitating and evaluating a bereavement group for adults with learning disabilities living in the community. British Journal of Learning Disabilities, 41(4), 266-272. https://doi.org/10.1111/j.1468-3156.2012.00751.x
BRESTAFF, K. (1984). Reactions to death: can the mentally handicapped grieve? Some experience of those who did. Teaching and Training, 22(1), 10-16.
BRICKELL, C. y MUNIR, K. (2008). El duelo y sus complicaciones en las personas con discapacidad intelectual. Revista Síndrome de Down, 25(2), 68-76.
CARROLL, D. W. (2013). Families of children with developmental disablities: understanding stress and opportunities for growth. American Psychological Association. https://doi.org/10.1037/14192-000
CATHCART, F. (1995). Death and people with learning disabilities: interventions to support clients and carers. British Journal of Clinical Psychology, 34(2), 165-175. https://doi.org/10.1111/j.2044-8260.1995.tb01452.x
*CHOW, A. Y. M., McEVOY, J., CHAN, I. K. N., BORSCHEL, M., YUEN, J. H. L. y LO, J. Y. M. (2017). Do men and women with intellectual disabilities understand death? Journal of Intellectual Disability Research, 61(12), 1130-1139. https://doi.org/10.1111/jir.12431
CRISTÓBAL, L., ALCEDO, M. A. y GÓMEZ, L. E. (2017). Duelo en discapacidad intelectual: los avances de una década. Revista Española de Discapacidad, 5(2), 53-72. https://doi.org/10.5569/2340-5104.05.02.03
DELORME, M. (1999). Ageing and people with developmental disabilities. En I. BROWN y M. PERCY (Eds.), Developmental disabilities in Ontario (pp. 189-195). Front Porch Publishing.
DODD, P., DOWLING, S. y HOLLINS, S. (2005). A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. Journal of Intellectual Disability Research, 49(7), 537-543. https://doi.org/10.1111/j.1365-2788.2005.00702.x
DODD, P., GUERIN, S., McEVOY, J., BUCKLEY, S., TYRRELL, J. y HILLERY, J. (2008). A study of complicated grief symptoms in people with intellectual disabilities. Journal of Intellectual Disability Research, 52(5), 415-425. https://doi.org/ 10.1111/j.1365-2788.200801043.x
*DOMINGO, E., CUESTA, J. L. y SÁNCHEZ, S. (2018). Cómo afrontar el duelo en las personas con discapacidad. Una aproximación al problema. Siglo Cero, 49(4), 51-68. https://doi.org/10.14201/scero20184945168
DOWLING, S., HUBERT, J., WHITE, S. y HOLLINS, S. (2006). Bereaved adults with intellectual disabilities: a combined randomized controlled trial and qualitative study of two community-based interventions. Journal of Intellectual Disability Research, 50(4), 277-287. https://doi.org/10.1111/j.1365-2788.2005.00759.x
FERNÁNDEZ-ÁVALOS, M., FERNÁNDEZ-ALCÁNTARA, M., CRUZ-QUINTANA, F. y PÉREZ-MARFIL, M. N. (2017). Assessment of the grieving processes in people with intellectual disabilities: a systematic review. Estudios de Psicología, 1-9. https://doi.org/10.1080/02109395.2017.1328846
*FORRESTER-JONES, R. (2013). The road barely taken: funerals, and people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 26(3), 243-256. https://doi.org/10.1111/jar.12022
GILRANE-McGARRY, U. y TAGGART, L. (2012). An exploration of the support received by people with intellectual disabilities who have been bereaved. Journal of Research in Nursing, 12, 129-144. https://doi.org/10.1177/1744987106075611
HOLLINS, S. y ESTERHUYZEN, A. (1997). Bereavement and grief in adults with intellectual disabilities. British Journal of Psychiatry, 170, 497-501. https://doi.org/10.1192/bjp.170.6.497
HUME, K., REGAN, T., MEGRONIGLE, L. y RHINEHALT, C. (2016). Supporting students with autism spectrum disorder through grief and loss. Teaching Exceptional Children, 48(3), 128-136. https://doi.org/10.1177/0040059915618196
*IRWIN, L., O’MALLEY, G., NEELOFUR, S. y GUERIN, S. (2017). An exploration of clinical psychology’s response to parental bereavement in adults with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 30(6), 1065-1075. https://doi.org/10.1111/jar.12380
JAMES, I. A. (1995). Helping people with learning disability to cope with bereavement. British Journal of Learning Disabilities, 23, 74-78. https://doi.org/10.1111/j.1468-3156.1995.tb00168.x
KITCHING, N. (1987). Helping people with mental handicaps cope with bereavement: a case study with discussion. British Journal of Learning Disabilities, 15(2), 48-86. https://doi.org/10.1111/j.1468-3156.1987.tb00395.x
KOEHLER, K. (2016). Supporting children and young people with Autism Spectrum Disorder through bereavement. Bereavement Care, 35(3), 94-101. https://doi.org/10.1080/02682621.2016.1254437
LAWHON, T. (2004). Teachers and schools can aid grieving students. Education, 124(3), 559-566.
LORD, A. J., FIELD, S. y SMITH, I. C. (2017). The experiences of staff who support people with intellectual disability on issues about death, dying and bereavement: a metasynthesis. Journal of Applied Research in Intellectual Disabilities, 30(6), 1007-1021. https://doi.org/10.1111/jar.12376
MACHALE, R. y CAREY, S. (2002). An investigation of the effects of bereavement on mental health and challenging behaviour in adults with learning disability. British Journal of Learning Disabilities, 30(3), 113-117. https://doi.org/10.1046/j.1468-3156.2002.00166.x
MACHALE, R., McEVOY, J. y TIERNEY, E. (2009). Caregiver perceptions of the understanding of death and need for bereavement support in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 22(6), 574-581. https://doi.org/ 10.1111/j.1468-3148.2009.00513.x
MAPPIN, R. y HANLON, D. (2005). Description and evaluation of a bereavement group for people with learning disabilities. British Journal of Learning Disabilities, 33(3), 106-112. https://doi.org/10.1111/j.1468-3156.2005.00339.x
McADAMS, E. y STOUGH, L. (2018). Teacher perspectives on grief among children with intellectual disabilities. Journal of Loss and Trauma, 23(2), 159-175. https://doi.org/10.1080/15325024.2018.1434859
McBRIDE, J. y SIMMS, S. (2001). Death in the family: adapting a family systems framework to the grief process. American Journal of Family Therapy, 29(1), 59-73. https://doi.org/ 10.1080/019261801750182414
McCLEAN, K. y GUERIN, S. (2019). A qualitative analysis of psychologists’ views of bereavement among children with intellectual disability in Ireland. British Journal of Learning Disabilities, 47(4), 247-254. https://doi.org/ 10.1111/bld.12284
McEVOY, J., MACHALE, R. y TIERNEY, E. (2012). Concept of death and perceptions of bereavement in adults with intellectual disabilities. Journal of Intellectual Disability Research, 56(2), 191-203. https://doi.org/10.1111/j.1365-2788.2011.01456.x
*McEVOY, J., TREACY, B. y QUIGLEY, J. (2017). A matter of life and death: knowledge about the body and concept of death in adults with intellectual disabilities. Journal of Intellectual Disability Research, 61(1), 89-98. https://doi.org/10.1111/jir.12347
*McRITCHIE, R., McKENZIE, K., QUAYLE, E., HARLIN, M. y NEUMANN, K. (2014). How adults with an intellectual disability experience bereavement and grief: a qualitative exploration. Death Studies, 38(3), 179-185. https://doi.org/10.1080/07481187.2012.738772
MELHEM, N. M., MORITZ, G., WALKER, M., SHEAR, M. K. y BRENT, D. (2007). Phenomenology and correlates of complicated grief in children and adolescents. Journal of the American Academy of Child and Adolescent Psychiatry, 46, 493-499. https://doi.org/10.1097/chi.0b013e31803062a9
MESIBOV, G. B., SHEA, V. y SCHOPLER, E. (2005). The TEACCH approach to autism spectrum disorders. Springer Science & Business Media.
MUÑIZ, V., ALCEDO, M. A. y GÓMEZ, L. E. (2017). El proceso de duelo de personas con discapacidad intelectual. Siglo Cero, 48(3), 7-25. https://doi.org/14201/scero2017483725
*O’KEEFFE, L., GUERIN, S., McEVOY, J., LOCKHART, K. y DODD, P. (2019). The process of developing self-report measures in intellectual disability: a case study of a complicated grief scale. British Journal of Learning Disabilities, 47(2), 134-144. https://doi.org/10.1111/bld.12261
OSWIN, M. (1992). Don’t ask us to dance: some aspects of bereavement for people who have learning difficulties. Clinical Psycholy Forum, 44, 16-21.
RODRÍGUEZ-HERRERO, P., DE LA HERRÁN, A. e IZUZQUIZA, D. (2013). “Y si me muero… ¿Dónde está mi futuro?” Hacia una educación para la muerte en personas con discapacidad intelectual. Educación XXI, 16(1), 329-350. https://doi.org/10.5944/educxx1.16.1.729
*RODRÍGUEZ-HERRERO, P., IZUZQUIZA, D. y De la HERRÁN, A. (2013). Diseño, aplicación y evaluación de un programa de educación para la muerte dirigido a personas adultas con discapacidad intelectual. Revista Iberoamericana de Educación, 63(1), 199-219.
*RODRÍGUEZ-HERRERO, P., IZUZQUIZA, D. y De la HERRÁN, A. (2015). Concept of death in young people with intellectual disability: a contribution to the pedagogy on death. Siglo Cero, 46(1), 67-80. https://doi.org/10.14201/scero20154616780
*STANCLIFFE, R. J., WIESE, M. Y., READ, S., JELTES, G. y CLAYTON, J. M. (2016). Knowing, planning for and fearing death: do adults with intellectual disability and disability staff differ? Research in Developmental Disabilities, 49, 47-59. https://doi.org/10.1016/j.ridd.2015.11.016
STODDART, K. P., BURKE, L. y TEMPLE, V. (2002). Outcome evaluation of bereavement groups for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15(1), 28-35. https://doi.org/ 10.1046/j.1468-3148.2002.00084.x
*THORP, N., STEDMON, J. y LLOYD, H. (2018). “I carry her in my heart”: an exploration of the experience of bereavement for people with learning disability. British Journal of Learning Disabilities, 46(1), 45-53. https://doi.org/10.1111/bld.12212
TUFFREY-WIJNE, I. y ROSE, T. (2017). Investigating the factors that affect the communication of death-related bad news to people with intellectual disabilities by staff in residential and supported living services: an interview study. Journal of Intellectual Disability Research, 61(8), 727-736. https://doi.org/10.1111/jir.12375
WASS, H. y CORR, C. A. (1982). Helping children cope with death: guidelines and resources. Hemisphere Publishing Corporation.
WORDEN, J. W. (2013). El tratamiento del duelo. Asesoramiento psicológico y terapia. Paidós.
*YOUNG, H. y GARRARD, B. (2016). Bereavement and loss: developing a memory box to support a young woman with profound learning disabilities. British Journal of Learning Disabilities, 44(1), 78-84. https://doi.org/10.1111/jir.1237510.1111/bld.12129
*ZAKRESKI, M. J. (2017). Treating complicated grief in a teenager with autism: when the client’s limitations prevent engagement in therapy. Clinical Practice in Pediatric Psychology, 5(3), 273. https://doi.org/10.1111/jir.1237510.1037/cpp0000191
Bóveda Hermosilla, M., & Flores Robaina, N. (2021). Factores determinantes del duelo en personas con discapacidad intelectual y Tea: revisión sistemática. Siglo Cero, 52(3), 59–79. https://doi.org/10.14201/scero20215235979
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