Study of Quality of Life and Adaptive Behavior in Children and Adolescents with Intellectual Disability
Abstract Introduction: Children and adolescents with intellectual disabilities (ID) require cognitive, adaptive and quality of life (QoL) assessments in order to program integral strategies of intervention based on their needs. The objective of this study is to describe quality of life, adaptive behavior and cognition in a series of children and adolescents with ID. Method: 28 patients between 6 and 18 years old were studied with QoL scales, adaptive behavior and cognitive evaluations, and their correlations. Results: On the CV scale, an average score was obtained, 45-50 percentile range, with a lower score in dimensions of personal development, interpersonal relationships and social inclusion. On the adaptive behavior scale, most of the patients presented a low adaptive level; their most affected domains were communication and socialization. When relating QoL, adaptive behavior and cognition, a significant correlation was found between general adaptive function and cognition (r = ,74, p < ,01) and between adaptive function and quality of life index (r = ,63, p < ,01). Conclusions: In our series of children and adolescent with ID, a lower adaptive behavior is associated with a lower QoL and lower cognition. Social inclusion, personal development and interpersonal relationships, as well as socialization and communication, are the lines to consider as intervention plans.
- Referencias
- Cómo citar
- Del mismo autor
- Métricas
AMADOR, J. A. y FORNS, M. (2019). Escala de inteligencia de Wechsler para niños, WISC-V, quinta edición. Facultad de Psicología. Universidad de Barcelona.
AMERICAN PSYCHIATRIC ASSOCIATION. (2013). Diagnostic and statistical manual of mental disorders. Quinta edición.
EDWARDS, M., GÓMEZ, M. y PARDO, M. (2012). Test de Aprendizaje y Desarrollo Infantil. Galileo.
GÓMEZ, L. E., ALCEDO, M, A., ARIAS, B., FONTANIL, Y., ARIAS, V., MONSALVE, A. y VERDUGO, M. Á. (2016). A new scale for the measurement of quality of life in children with intellectual disability. Research in Developmental Disabilities, 53-54, 399-410.
GOMEZ, L. E., ALCEDO, M. A., VERDUGO, M. A?., ARIAS, B., ARIAS, V., MONSALVE, A., FONTANIL, Y. y MORAN, L. (2016). KidsLife: evaluacio?n de la calidad de vida de nin?os para nin?os y adultos jo?venes. INICO.
GMEZ, L. E., PEÑA, E., ALCEDO, M. A., MONSALVE, A., FONTANIL, Y., VERDUGO, M. Á. y ARIAS, B. (2014). El constructo de calidad de vida en niños y adolescentes con discapacidades mu?ltiples y profundas: propuesta para su evaluacio?n. [The quality of life construct for children and adolescents with multiple and profound disabilities: proposal for its evaluation]. Siglo Cero, 45(1), 56-69.
GONZÁLEZ, E., GÓMEZ, L. E. y ALCEDO, M. A. (2016). Enfermedades raras y discapacidad intelectual: evaluacio?n de la calidad de vida de nin?os y jo?venes [Rare diseases and intellectual disability: assessment of quality of life of children and adolescents]. Siglo Cero, 47(3), 7-27.
LEMMON, M. E., HUFFSTETLER, H. E. y REEVE, B. B. (2020). Measuring health-related quality of life in pediatric neurology. Journal of Child Neurology, 35(10), 681-689.
MONTERO, D. y LAGOS, J. (2011). Conducta adaptativa y discapacidad intelectual: 50 años de historia y su incipiente desarrollo en la educación en Chile. Estudios Pedagógicos XXXVII, 2, 345-361.
NCUBE, B. L, PERRY, A. y WEISS, J. A. (2018). The quality of life of children with severe developmental disabilities. Journal of Intellectual Disability Research, 62(3), 237-244.
PERRY, J. y FELCE, D. (2005). Correlation between subjective and objective measures of outcome in staffed community housing. Journal of Intellectual Disability Research, 49, 278-287.
RODRÍGUEZ, M., ROSAS, R. y PIZARRO, M. (2019). Rendimiento en escala WISC-V en población urbana y rural de Chile. CEDETI UC Papeles de Investigación, 11.
ROSAS, R., TENORIO, M., PIZARRO, M., CUMSILLE, P., BOSCH, A., ARANCIBIA, S., CARMONA, M., PÉREZ-SALAS, C., PINO, E., VIZCARRA, B. y ZAPATA-SEPÚLVEDA, P. (2014). Estandarización de la Escala Wechsler de Inteligencia Para Adultos Cuarta Edición en Chile. Psykhe [online], 23, 1. https://doi.org/10.7764/psykhe.23.1.529
SCHALOCK, R. L., BORTHWICK-DUFFY, S. A., BRADLEY, V. J., BUNTINX, W. H., COULTER, D. L., CRAIG, E. M., GÓMEZ, S. C., LACHAPELLE, Y., LUCKASSON, R., REEVE, A., SHOGREN, K. A., SNELL, M. E., SPREAT, S., TASSE, M. J., THOMPSON, J. R., VERDUGO-ALONSO, M. Á., WEHMEYER, M. L. y YEAGER, M. H. (2010). Intellectual disability: definition, classification, and system of supports (11e). American Association on Intellectual and Developmental Disabilities.
SCHALOCK, R. L., VERDUGO, M. Á., GÓMEZ, L. E. y REINDERS, H. S. (2016). Moving us toward a theory of individual quality of life. American Journal on Intellectual and Developmental Disabilities, 121(1), 1-12. https://doi:10.1352/1944-7558-121.1.1
SPARROW, S. S., CICCHETTI, D. V. y BALLA, D. A. (2005). Vineland Adaptive Behavior Scales (2nd ed.). American Guidance Service.
TASSÉ, M. J., LUCKASSON, R. y SCHALOCK, R. L. (2016). The relation between intellectual functioning and adaptive behavior in the diagnosis of intellectual disability. Journal of Intellectual and Developmental Disability, 54(6), 381-390.
UNICEF. (2007). Child poverty in perspective: an overview of child well-being in rich countries. UNICEF Innocenti Research Centre.
VERDUGO, M. Á. y SCHALOCK, R. L. (2001). El concepto de calidad de vida en los servicios humanos. En Actas de las IV Jornadas Científicas de Investigación sobre Personas con Discapacidad. Amarú.
AMERICAN PSYCHIATRIC ASSOCIATION. (2013). Diagnostic and statistical manual of mental disorders. Quinta edición.
EDWARDS, M., GÓMEZ, M. y PARDO, M. (2012). Test de Aprendizaje y Desarrollo Infantil. Galileo.
GÓMEZ, L. E., ALCEDO, M, A., ARIAS, B., FONTANIL, Y., ARIAS, V., MONSALVE, A. y VERDUGO, M. Á. (2016). A new scale for the measurement of quality of life in children with intellectual disability. Research in Developmental Disabilities, 53-54, 399-410.
GOMEZ, L. E., ALCEDO, M. A., VERDUGO, M. A?., ARIAS, B., ARIAS, V., MONSALVE, A., FONTANIL, Y. y MORAN, L. (2016). KidsLife: evaluacio?n de la calidad de vida de nin?os para nin?os y adultos jo?venes. INICO.
GMEZ, L. E., PEÑA, E., ALCEDO, M. A., MONSALVE, A., FONTANIL, Y., VERDUGO, M. Á. y ARIAS, B. (2014). El constructo de calidad de vida en niños y adolescentes con discapacidades mu?ltiples y profundas: propuesta para su evaluacio?n. [The quality of life construct for children and adolescents with multiple and profound disabilities: proposal for its evaluation]. Siglo Cero, 45(1), 56-69.
GONZÁLEZ, E., GÓMEZ, L. E. y ALCEDO, M. A. (2016). Enfermedades raras y discapacidad intelectual: evaluacio?n de la calidad de vida de nin?os y jo?venes [Rare diseases and intellectual disability: assessment of quality of life of children and adolescents]. Siglo Cero, 47(3), 7-27.
LEMMON, M. E., HUFFSTETLER, H. E. y REEVE, B. B. (2020). Measuring health-related quality of life in pediatric neurology. Journal of Child Neurology, 35(10), 681-689.
MONTERO, D. y LAGOS, J. (2011). Conducta adaptativa y discapacidad intelectual: 50 años de historia y su incipiente desarrollo en la educación en Chile. Estudios Pedagógicos XXXVII, 2, 345-361.
NCUBE, B. L, PERRY, A. y WEISS, J. A. (2018). The quality of life of children with severe developmental disabilities. Journal of Intellectual Disability Research, 62(3), 237-244.
PERRY, J. y FELCE, D. (2005). Correlation between subjective and objective measures of outcome in staffed community housing. Journal of Intellectual Disability Research, 49, 278-287.
RODRÍGUEZ, M., ROSAS, R. y PIZARRO, M. (2019). Rendimiento en escala WISC-V en población urbana y rural de Chile. CEDETI UC Papeles de Investigación, 11.
ROSAS, R., TENORIO, M., PIZARRO, M., CUMSILLE, P., BOSCH, A., ARANCIBIA, S., CARMONA, M., PÉREZ-SALAS, C., PINO, E., VIZCARRA, B. y ZAPATA-SEPÚLVEDA, P. (2014). Estandarización de la Escala Wechsler de Inteligencia Para Adultos Cuarta Edición en Chile. Psykhe [online], 23, 1. https://doi.org/10.7764/psykhe.23.1.529
SCHALOCK, R. L., BORTHWICK-DUFFY, S. A., BRADLEY, V. J., BUNTINX, W. H., COULTER, D. L., CRAIG, E. M., GÓMEZ, S. C., LACHAPELLE, Y., LUCKASSON, R., REEVE, A., SHOGREN, K. A., SNELL, M. E., SPREAT, S., TASSE, M. J., THOMPSON, J. R., VERDUGO-ALONSO, M. Á., WEHMEYER, M. L. y YEAGER, M. H. (2010). Intellectual disability: definition, classification, and system of supports (11e). American Association on Intellectual and Developmental Disabilities.
SCHALOCK, R. L., VERDUGO, M. Á., GÓMEZ, L. E. y REINDERS, H. S. (2016). Moving us toward a theory of individual quality of life. American Journal on Intellectual and Developmental Disabilities, 121(1), 1-12. https://doi:10.1352/1944-7558-121.1.1
SPARROW, S. S., CICCHETTI, D. V. y BALLA, D. A. (2005). Vineland Adaptive Behavior Scales (2nd ed.). American Guidance Service.
TASSÉ, M. J., LUCKASSON, R. y SCHALOCK, R. L. (2016). The relation between intellectual functioning and adaptive behavior in the diagnosis of intellectual disability. Journal of Intellectual and Developmental Disability, 54(6), 381-390.
UNICEF. (2007). Child poverty in perspective: an overview of child well-being in rich countries. UNICEF Innocenti Research Centre.
VERDUGO, M. Á. y SCHALOCK, R. L. (2001). El concepto de calidad de vida en los servicios humanos. En Actas de las IV Jornadas Científicas de Investigación sobre Personas con Discapacidad. Amarú.
Santander, P., Cárdenas, A., Troncoso, M., Pedemonte, M. J., Yáñez, C., López, C., Guajardo, K., Lagos, P., Silva, C., Neves, M., Cifuentes, D., & Gallegos, S. (2022). Study of Quality of Life and Adaptive Behavior in Children and Adolescents with Intellectual Disability. Siglo Cero, 53(3), 127–143. https://doi.org/10.14201/scero202253127143
Downloads
Download data is not yet available.
+
−