Quality of life in family and children with cochlear implants and hearing aids
Abstract Introduction: The KINDL questionnaire is used on a recurrent basis to estimate the quality of life (QoL) and the effects of well-being in the daily activities of children. The aim of this study: was to discover how children with cochlear implants (CI) or hearing aids (A) recognize their quality of life (QoL) and compare their self-reports and parents' reports on their QoL. Material and method: The sample of children with CI (n=187) and A (n=113) and their parents of children with CI (n=115) and parents of children with A (n=29) answered, respectively, the KINDL versions for children or parents. A one-way MANOVA was applied to determine if there were differences between the independent groups (children and parents) in more than one continuous dependent variable (KINDL dimensions), an intraclass correlation coefficient to see to what extent several quantitative measures of KINDL agreed. In addition, we calculated the agreement for the subjects of the samples by evaluating the variability of their differences. Results: CI children perceived the QoL differently and with lower scores compared to children with A in the different scales linked to the KINDL questionnaire. There was a “good agreement” between the self-reports of children with IC and A, and the parental reports of children with IC and A in the total QoL (.65). Conclusion: The findings of this study can be used to create family counseling strategies on the social and educational needs of children of IC and A.
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Alegre OM. Investigación sobre la inclusión y calidad de vida de estudiantes con implante coclear en Canarias. 2018. Sevilla: @rea digital, 2.0, SL.
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Rajmil L, Berra S, Estrada MD, Serra-Sutton V, Rodriguez M, Borrel C, Riley A, Starfield B. Versión espa-ola del perfil de salud infantil, cuestionario para padres y madres: Child Health and Illness Profile-Child Edition Parent Report form (CHIP-CE/PRF). Gac Sanit. 2004; 18(4):305-311. doi: 10.1016/S0213-9111(04)72017-8. - https://doi.org/10.1016/S0213-9111(04)72017-8
Rajmil L, Serra-Sutton V, Fernández-López J, Berra S, Aymerich M, Cieza A, Ferrer M, Bullinger M, Ravens-Sieberer U. Versión espa-ola del cuestionario de calidad de vida relacionada con la salud en población infantil y de adolescentes: el KINDL. An Pediatr. 2004; 60(6): 514-521. doi.org/10.1016/S1695-4033(04)78320-4. - https://doi.org/10.1016/S1695-4033(04)78320-4
Ravens-Sieberer U, Bullinger M. Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Qual Life Res. 1998; 7:399-407. - https://doi.org/10.1023/A:1008853819715 - PMid:9691720
Razafimahefa-Raoelina T, Farinetti A, Nicollas R, Triglia JM, Roman S, Anderson L. Auto- et hétéroévaluation de la qualité de vie des enfants implantés cochléaires. Ann fr Oto-rhino-laryngol Pathol Cervico-fac. 2016; 133(1):29-33. - https://doi.org/10.1016/j.aforl.2015.01.012
Sakiz H, Sart ZH, Börkan B, Korkmaz B, Babür N. Quality of Life of Children with Learning Disabilities: A Comparison of Self-Reports and Proxy Reports. Learn Disabil Res Pract. 2015; 30(3):114-126. - https://doi.org/10.1111/ldrp.12060
Stevanovic D, Tadic I, Novakovic T, Kisic-Tepavcevic D, Ravens-Sieberer U. Evaluating the Serbian version of the KIDSCREEN quality-of-life questionnaires: reliability, validity, and agreement between children's and parents' ratings. Qual Life Res. 2013; 22(7): 1729-37. doi: 10.1007/s11136-012-0286-4. - https://doi.org/10.1007/s11136-012-0286-4
Stevanovic D. Serbian KINDL questionnaire for quality of life assessments in healthy children and adolescents: repro- ducibility and construct validity. Health Qual Life Out. 2009; 7:79. - https://doi.org/10.1186/1477-7525-7-79 - PMid:19715576 PMCid:PMC2739511
Warner-Czyz AD, Loy B, Roland PS, Tong L, Tobey EA. Parent versus child assessment of quality of life in children using cochlear implants. Int J Pediatr Otorhinolaryngol. 2009; 73(10):1423-1429. - https://doi.org/10.1016/j.ijporl.2009.07.009 - PMid:19674798 PMCid:PMC2891383
Warner-Czyz AD, Loy B, Tobey EA, Nakonezny P, Roland PS. Health-related quality of life in children and adolescents who use cochlear implants. Int J Pediatr Otorhinolaryngol. 2011; 75(1):95-105. - https://doi.org/10.1016/j.ijporl.2010.10.018 - PMid:21074282
Wee HL, Lee WR, Ravens-Sieberer U, Erhart M, Li SC. Validation of the English version of the KINDLO? generic children's health-related quality of life instrument for an Asian population – results from a pilot test. Qual Life Res. 2005; 14:1193-1200. doi: 10.1007/s11136-004-2957-2. - https://doi.org/10.1007/s11136-004-2957-2
Bullinger M, Brüt AL, y Ravens-Sieberer U. Psychometric properties of the KINDL-R questionnaire: results of the BELLA study. Eur Child Adoles Psy. 2008; 17(1):125-132. doi: https://doi.org/10.1007/s00787-008-1014-z. - https://doi.org/10.1007/s00787-008-1014-z
Christophersen KA, Helseth S, Lund T. A generalizability study of the Norwegian version of KINDLR in a sample of healthy adolescents. Qual Life Res. 2008; 17(1):87-93. doi: 10.1007/s11136-007-9289-y. - https://doi.org/10.1007/s11136-007-9289-y
Edwards L, Hill T, Mahon M. Quality of life in children and adolescents with cochlear implants and additional needs. Int J Pediatr Otorhinolaryngol. 2012; 76(6):851-857. - https://doi.org/10.1016/j.ijporl.2012.02.057 - PMid:22444739
Hintermair M. Health-related quality of life and classroom participation of deaf and hard-of-hearing students in general schools. J Deaf Stud Deaf Educ. 2011; 16(2):254-71. - https://doi.org/10.1093/deafed/enq045 - PMid:20924118
Huber M. Health-related quality of life of Austrian children and adolescents with cochlear implants. Int J Pediatr Otorhinolaryngol. 2005; 69(8): 1089-1101. doi: 10.1016/j.ijporl.2005.02.018. - https://doi.org/10.1016/j.ijporl.2005.02.018
Huber M. Health-related quality of life of Austrian children and adolescents with cochlear implants. Int J Pediatr Otorhinolaryngol. 2005; 69(8):1089-1101. doi: 10.1016/j.ijporl.2005.02.018. - https://doi.org/10.1016/j.ijporl.2005.02.018
Lee PH, Chang LI, Ravens-Sieberer U. Psychometric evaluation of the Taiwanese version of the Kiddo-kINDL generic children's health-related quality of life instrument. Qual Life Res. 2008; 17:603-611. - https://doi.org/10.1007/s11136-008-9328-3 - PMid:18368515
Loy B, Warner-Czyz AD, Tong L, Tobey EA, Roland PS. The children speak: An examination of the quality of life of pediatric cochlear implant users. Otolaryngol Head Neck Surg. 2010; 142(2):247-253. - https://doi.org/10.1016/j.otohns.2009.10.045 - PMid:20115983 PMCid:PMC2852181
Meserole RL, Carson ChM, Riley AW, Wang NY, Quittner AL, Eisenberg LS, Tobey EA, Francis HW, Niparko JK. Assessment of health-related quality of life 6 years after childhood cochlear implantation. Qual Life Res. 2014; 23(2):719-731. - https://doi.org/10.1007/s11136-013-0509-3 - PMid:23975382 PMCid:PMC3948324
Neumann S, Salm S, Rietz Ch, Stenneken P. The German Focus on the Outcomes of Communication Under Six (FOCUS-G): Reliability and Validity of a Novel Assessment of Communicative Participation. J Speech Lang Hear Res. 2017; 60:675-681. - https://doi.org/10.1044/2016_JSLHR-L-15-0219 - PMid:28241283
Pe-aranda A, Mendieta JC, Perdomo JA, Aparicio ML, Marín LM, García JM, Baron C. Beneficios económicos del implante coclear para la hipoacusia sensorineural profunda. Rev Panam Salud Pública. 2012; 31(4):325-331. - https://doi.org/10.1590/S1020-49892012000400009
Pérez-Zaballos MT, Ramos-Macías Á, Pérez-Placencia D, Borkoski SA, Ramos Á. LifeQuestionnaire. A new tool for the evaluation of quality of life in patients with hearing loss-using WhatsApp. Eur Ann Otorhinolaryngol Head Neck Dis. 2016; 133:S44-S49. doi: 10.1016/j.anorl.2016.04.020. - https://doi.org/10.1016/j.anorl.2016.04.020
Rajmil L, Berra S, Estrada MD, Serra-Sutton V, Rodriguez M, Borrel C, Riley A, Starfield B. Versión espa-ola del perfil de salud infantil, cuestionario para padres y madres: Child Health and Illness Profile-Child Edition Parent Report form (CHIP-CE/PRF). Gac Sanit. 2004; 18(4):305-311. doi: 10.1016/S0213-9111(04)72017-8. - https://doi.org/10.1016/S0213-9111(04)72017-8
Rajmil L, Serra-Sutton V, Fernández-López J, Berra S, Aymerich M, Cieza A, Ferrer M, Bullinger M, Ravens-Sieberer U. Versión espa-ola del cuestionario de calidad de vida relacionada con la salud en población infantil y de adolescentes: el KINDL. An Pediatr. 2004; 60(6): 514-521. doi.org/10.1016/S1695-4033(04)78320-4. - https://doi.org/10.1016/S1695-4033(04)78320-4
Ravens-Sieberer U, Bullinger M. Assessing health-related quality of life in chronically ill children with the German KINDL: first psychometric and content analytical results. Qual Life Res. 1998; 7:399-407. - https://doi.org/10.1023/A:1008853819715 - PMid:9691720
Razafimahefa-Raoelina T, Farinetti A, Nicollas R, Triglia JM, Roman S, Anderson L. Auto- et hétéroévaluation de la qualité de vie des enfants implantés cochléaires. Ann fr Oto-rhino-laryngol Pathol Cervico-fac. 2016; 133(1):29-33. - https://doi.org/10.1016/j.aforl.2015.01.012
Sakiz H, Sart ZH, Börkan B, Korkmaz B, Babür N. Quality of Life of Children with Learning Disabilities: A Comparison of Self-Reports and Proxy Reports. Learn Disabil Res Pract. 2015; 30(3):114-126. - https://doi.org/10.1111/ldrp.12060
Stevanovic D, Tadic I, Novakovic T, Kisic-Tepavcevic D, Ravens-Sieberer U. Evaluating the Serbian version of the KIDSCREEN quality-of-life questionnaires: reliability, validity, and agreement between children's and parents' ratings. Qual Life Res. 2013; 22(7): 1729-37. doi: 10.1007/s11136-012-0286-4. - https://doi.org/10.1007/s11136-012-0286-4
Stevanovic D. Serbian KINDL questionnaire for quality of life assessments in healthy children and adolescents: repro- ducibility and construct validity. Health Qual Life Out. 2009; 7:79. - https://doi.org/10.1186/1477-7525-7-79 - PMid:19715576 PMCid:PMC2739511
Warner-Czyz AD, Loy B, Roland PS, Tong L, Tobey EA. Parent versus child assessment of quality of life in children using cochlear implants. Int J Pediatr Otorhinolaryngol. 2009; 73(10):1423-1429. - https://doi.org/10.1016/j.ijporl.2009.07.009 - PMid:19674798 PMCid:PMC2891383
Warner-Czyz AD, Loy B, Tobey EA, Nakonezny P, Roland PS. Health-related quality of life in children and adolescents who use cochlear implants. Int J Pediatr Otorhinolaryngol. 2011; 75(1):95-105. - https://doi.org/10.1016/j.ijporl.2010.10.018 - PMid:21074282
Wee HL, Lee WR, Ravens-Sieberer U, Erhart M, Li SC. Validation of the English version of the KINDLO? generic children's health-related quality of life instrument for an Asian population – results from a pilot test. Qual Life Res. 2005; 14:1193-1200. doi: 10.1007/s11136-004-2957-2. - https://doi.org/10.1007/s11136-004-2957-2
Alegre-Rosa, O. M., & Villar-Angulo, L. M. (2018). Quality of life in family and children with cochlear implants and hearing aids. Revista ORL, 10(2), 109–119. https://doi.org/10.14201/orl.19209
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