Determinants of Grief in People with Intellectual Disabilities and ASD: Systematic Review

Abstract

Background: Historically, people with disabilities have been excluded from issues related to death and grief. However, there are factors that affect and influence their coping with a loss. It is necessary to know how people with intellectual and developmental disabilities experience grief in order to improve the care offered to the group. Method: A systematic review of the scientific articles published during the years 2013 to 2020 in the main databases was carried out. Of 585 articles identified, 14 were selected that met the inclusion criteria. Results: Including people with disabilities in funeral rituals, improving communication and facilitating emotional expression are essential aspects for adequate coping with grief. Conclusions: It is necessary to offer supports adapted to the type of disability, increase participation and teach adaptive coping strategies on issues related to death and grief. For this, it is necessary to increase applied research in order to design and implement educational programs for death and psychological intervention adjusted to the needs of this group.

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Determinants of Grief in People with Intellectual Disabilities and ASD: Systematic Review. (2021). Siglo Cero, 52(3), 59-79. https://doi.org/10.14201/scero20215235979

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