El trastorno del espectro autista en la Unión Europea (ASDEU)

  • Manuel Posada de la Paz
    Instituto de Salud Carlos III mposada[at]isciii.es
  • Ricardo Canal-Bedia
    Universidad de Salamanca

Resumen

La mejora de los servicios de apoyo para las personas con trastorno del espectro autista (TEA) y a sus familias en Europa requiere conocer su realidad epidemiológica, así como identificar las experiencias y procedimientos para la detección, diagnóstico, tratamiento y apoyo más eficaces y mejor valorados por los receptores de estos servicios. El proyecto “El Trastorno del Espectro Autista en la Unión Europea” (ASDEU) ha impulsado entre 2014 y 2018 un conjunto de estrategias de investigación que han permitido aplicar un modelo de salud pública sobre los TEA centrado en los métodos de estimación de la prevalencia, los programas de detección precoz y la mejora del diagnóstico y la intervención temprana. En este artículo se presenta un resumen de los resultados obtenidos, así como de las conclusiones principales. Se destaca la necesidad de contar con un sistema fiable de medición de la prevalencia de los TEA en la Unión Europea, siendo la versión metodológica más eficiente la basada en registros de TEA de base poblacional; así mismo se propone fortalecer las estrategias de detección para hacerla más sistemática a nivel poblacional; mejorar los procesos de diagnóstico para que sean más rápidos, incluyan información sobre las necesidades de apoyo de la persona e incorporen a las familias; y potenciar la intervención temprana con mayor participación de las familias y vinculación al entorno habitual del menor.
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Posada de la Paz, M., & Canal-Bedia, R. (2021). El trastorno del espectro autista en la Unión Europea (ASDEU). Siglo Cero, 52(2), 43–59. https://doi.org/10.14201/scero20215224359

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